I hope everyone has a fun, safe day and eat lots of yummy food!! I am actually getting to go to my moms house for a few hours today so I am thankful for not having to spend the entire day in the hospital!
Have a GREAT day everyone! :)
Thursday, November 27, 2008
Wednesday, November 26, 2008
Waiting...
I have been waiting for an hour for medication for my headache.....
I have called the nurses station 3 times......
I am still waiting....
I have called the nurses station 3 times......
I am still waiting....
Tuesday, November 25, 2008
Question of the day...
From my nurse today: "So have you had this your whole life??"
WTF!!! I was like Yeah....I was born with it.
Then she's like: "So why do you need to take enzymes?"
I said: "Well, CF affects the lungs AND the digestive system so I need the enzymes to help digest my food."
Nurse: "Oh well I knew the lungs part but I didn't know it affected your digestion."
I just looked at her in amazement....I mean what do you even say to that? I told my doctor and he couldn't believe it either. He says I might get to move back down stairs by Thursday. I think its pretty sad when I can't get qualified help unless I am in pediatrics!!
WTF!!! I was like Yeah....I was born with it.
Then she's like: "So why do you need to take enzymes?"
I said: "Well, CF affects the lungs AND the digestive system so I need the enzymes to help digest my food."
Nurse: "Oh well I knew the lungs part but I didn't know it affected your digestion."
I just looked at her in amazement....I mean what do you even say to that? I told my doctor and he couldn't believe it either. He says I might get to move back down stairs by Thursday. I think its pretty sad when I can't get qualified help unless I am in pediatrics!!
Room Change
So my doctor is the same doctor that I have had since I was a kid...which makes him a Pediatric Pulmonologist. When I am admitted to the hospital I am placed in the pediatric ward still which is fine by me! I know all the nurses and I am comfortable being there.
Well, last night a kid needed to be admitted and there wasn't any other private rooms available...so guess who got bumped to the adult floor?? I was really upset and still am not very happy but what are you gonna do. The rooms are MUCH nicer, bigger and newer but I would rather have an old small room with nurses that I know and where I am comfortable, than where I am with nurses that know NOTHING about CF. Seriously, when I say they know nothing I MEAN nothing!
I haven't seen my doctor yet today which is unusual for him...he probably knows I am upset! I am still having headaches and I still feel kind of crappy so I will keep you posted on that too.
Well, last night a kid needed to be admitted and there wasn't any other private rooms available...so guess who got bumped to the adult floor?? I was really upset and still am not very happy but what are you gonna do. The rooms are MUCH nicer, bigger and newer but I would rather have an old small room with nurses that I know and where I am comfortable, than where I am with nurses that know NOTHING about CF. Seriously, when I say they know nothing I MEAN nothing!
I haven't seen my doctor yet today which is unusual for him...he probably knows I am upset! I am still having headaches and I still feel kind of crappy so I will keep you posted on that too.
Sunday, November 23, 2008
I am in the hospital
I just wasn't feeling ANY better and I want to be able to be with my family on Thanksgiving so I admitted myself tonight so that HOPEFULLY I can go to my moms house on Thursday and feel a little better than I have this week!
I have not slept in 5 nights due to my horrible headaches so I am just looking forward to some sleep!! Plus my appetite this week has been pretty much non-existent so I didn't want my weight drastically affected by not feeling good as well.
The only bad thing is that my doc wasn't on call today so I am being admitted by a doctor who doesn't really know my routine but that's ok I will see Dr. Faverio tomorrow! I will keep you updated on how I feel.
I have not slept in 5 nights due to my horrible headaches so I am just looking forward to some sleep!! Plus my appetite this week has been pretty much non-existent so I didn't want my weight drastically affected by not feeling good as well.
The only bad thing is that my doc wasn't on call today so I am being admitted by a doctor who doesn't really know my routine but that's ok I will see Dr. Faverio tomorrow! I will keep you updated on how I feel.
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