Last Week...

Well last Monday my SIL Stephanie took me back up to Gainesville for an x-ray to see how my little lungies were doing and he ended up scheduling a bronch for that afternoon and I was admitted again! :(

Steph spent the night with me and then headed home the next morning after we woke up. I am so lucky to have a SIL like her...she is ALWAYS there when I need her no matter what!

Unfortunately, we aren't entirely sure what is going on with me. When he does an xray and bronch it looks like pneumonia in the left lung but I have had no fevers at all (knock on wood!) and my biopsy's keep coming back negative for rejection but for some reason I don't think he is happy with those answers and thinks something else is going on! He said infection/rejection can look the same in a bronch so sometimes its hard to tell. So at the moment I am on IV cefipime twice a day and while I was admitted into the hospital I did 3 days of high solumerol IV and now I am on a prednisone tapper. Oh I am also on coumadin for a month (hello bruise city!) because I had a CT scan last week that showed a small blood clot so they are treating me for that as well! I tell yeah if it isn't one thing its another! :(

Easter was great. Dinner with my family was awesome and I am glad I wasn't in the "Get Well Hotel" as one of my friends calls it! I was there for 4 days last week but was able to leave on Friday to join my parents and little sister in Panama City Beach for the weekend to visit my Aunt and Uncle! It was a nice but WAY to short of a trip....next time it will have to be a longer

visit and maybe Danny can go too!

Our little family at Easter!

Me & Danny! :)

Me & Jessie in Panama City Beach!

Speaking of Danny...while I was away my awesome husband checked some things off his Honey-Do list and painted/added chair-rail to the living room and dining room. I am so thankful to have a husband that is handy AND motivated to actually do the projects that I think up in my head! :)

boring living room from when we first moved in....

slowly getting there...

Dining room from when we first moved in...

Now! :)

Well, thats all I got for now...I am on IV's for the rest of the week and have to go to a clinic appointment on May 11th so we will see what he says then. I have a meeting tomorrow for Jen's Kids so we will see how that turns out. The hospital unfortunately hasn't done a darn thing while I was away so we are meeting to decide where to go from here. I am kind of disappointed in them that they dropped the ball so we will see.

Anyway....have a great week everyone!! XoxoX

Lesson Learned...

Never go up for a "routine bronch" without an overnight bag just in case....that is the lesson I learned yesterday the hard way!

So Wednesday I called my coordinator to say I thought I needed a bronch because I was feeling a little congested as I still have a little hole in my neck and it makes it VERY hard to cough anything up if need be. My energy has been fine, my O2 has been fine it was just at night when I laid down to go to bed did I feel kind of crappy. So they scheduled me for a 8am bronch Thursday morning. I thought ok I will go get cleaned out and then head on home just like I did last time. NOT. SO. MUCH!

After doing my bronch, Dr. Baz talked to Danny saying that something just didn't look right so they were admitting me and that we would know more (whether it is rejection or infection) the next day. Because we weren't expecting to stay we had NOTHING with us...no clothes, no phone chargers, no toothbrushes....all I had was a pillow and blanket from the car ride up and my laptop and thank goodness I thought to have Danny take it so he had something to do during my bronch! So I sent Danny home last night so he could go to work today and pack our stuff and then he was gonna go back up to Gainesville when he got off.

Well, this morning came and luckily I don't have rejection but I do have pneumonia in my left lung. But the good news is its very treatable and my dr let me go home today and do IV's at home! YAY! Shortest hospital stay ever! :)

I do have to go back to Gville on Monday for an xray...if it shows improvement I can go back home and continue my dose of IV's if its not improved he will readmit me and do another bronch on Tuesday to see what else is going on!

Im just glad to be home for Easter weekend and spend time with my family. Let me tell you last night sucked being by myself in Gainesville....I think I cried for like 2 hours after Danny left just because I wasn't expecting to have to stay so I was thrown off...I felt like such a baby after I was done being emotional! lol

Anyway, I will let you all know what happens next week!! Have a great weekend everyone! :)

XoxoX

Gainesville Bound...

I was supposed to already be up in Gainesville as of yesterday because I had a clinic appointment this morning. BUT...the last couple days I could feel junk rattling around in my chest and because I still have a stupid hole in my neck cause of the wonderful trach I had (can you here the sarcasm??) it makes it VERY difficult to cough anything up! It basically gets stuck in my throat and its horrible. The little mucous I managed to force out luckily was clear/to a very light yellow so I wasn't to concerned. But I did call the coordinator yesterday to see about having a bronch Wednesday afternoon after clinic to suck all the junk out. I just don't want it brewing down there in my lungies and causing a bigger issue than it needs to be...I want it outta there!

SO, after my coordinator called me back with the fabulous news that my Dr couldn't fit me in today for a bronch. They cancelled my clinic appt and are just having me come in at 8am tomorrow morning for bloodwork and a bronch instead. Which is all fine and dandy except now I have to wait one more day of feeling congested (which I don't like btw! I have had months of normal breathing I like it that way!) plus I had to re-configure my ride situation. Luckily my SIL is awesome and her boss is awesome and gave her the night off to help me! Cause lets be honest I can't drive myself home after a bronch... :)

I am exhausted though! The last couple nights when I lay down is when I REALLY feel the congestion so it keeps me awake. Last night I even tried to sleep kinda sitting up and that was little help. So I am just hoping (an praying) that the bronch fixes everything and I will be sent home a happy camper. Because two of our really good friends are getting married Friday night out on Sanibel Island and I can't wait!! We got a room out there and everything (the resort is like 45min from our house and with an open bar till 2am we thought it best to stay there!) so we are gonna take full advantage and lounge by the pool....im even trying to talk Danny into parasailing with me but he is afraid of heights and being a sissy about it! LOL The man can walk not tied to anything on a roof beam but cant go in the air strapped to his wife....WTH! :)

I will definitely have pictures from this weekend that I will post once we get home. Until then I am gonna finish packing my bag for Gainesville and wait for my SIL to get here so we can hit the road!! Have a great rest of the week.....XoxoX

So...good news and not so good news...

On Sunday I woke up feeling VERY congested around my trach. NOT my lungs I just felt like crap was getting stuck in my trach and it was driving me crazy! I was coughing up paper towels full of mucous out of my trach (very gross by the way...you would think after 29 years mucous wouldn't gross me out so much but it does!) Finally I said to Danny should I call my coordinator and of course Danny being Danny says "I don't know"....thanks babe!

So I said for him to grab my thermometer (I check my vitals 9am and 9pm everyday I don't know if that is standard with everyone or not but if my temp is EVER 100 or greater I am to call immediately no matter what time of day) I didn't think I had a fever but I thought I will check it anyway and then decided if I am gonna call the coordinator. That was as 1:30pm and guess what I had a fever 100.4 to be exact! So I called my coordinator and of course they admitted me an hour later.

After x-rays and blood work it was determined that I have a little bit of pneumonia in my right lung. :( I of course was upset I mean I have done EVERYTHING right and worn my stupid mask everywhere how could this have happened? Well apparently I still have Psedomonas in my sinuses and that dripped down into my pretty new lungs and caused the pneumonia. Wonderful.

I was also upset because as you all know I was supposed to go home this weekend and I thought for sure this would delay my home coming by another week or so at least. Well I saw my wonderful Dr this morning and he said that I was going to be released on Friday and that he wanted me to do one more week of home IV's. I said Home, Home or tx-housing home....he says let me think about it.

Well my coordinator JUST called me because she wanted to know who I used for home health cause my Dr wanted her to set up my home health...that means Friday morning I get to go home!!! I haven't been to my house since the beginning of October and I am SO excited you have no idea!!!! :)

So I have to do IV's for a week...big deal I have done them before I get to go HOME!!! WOO HOO!! Thanks to everyone out there who put out all the good going home vibes for me I (and Danny) appreciate it!!!

XoxoX

P.S. Another piece of good news I found out the other day is my dr told me that my latest culture came back that I was sensitive to a bunch of abx which is great news so we can kick this pneumonia's butt! ;)

Half way there...

Well its taken 2 weeks but the other day I FINALLY started to feel better thanks to some 3% saline treatments! Along time ago I used to do 7% hypertonic saline treatments but they would cause me to have horrible bronco-spasms and wheezing so I stopped doing them. With this admission I was finding that my left upper lobe was just not getting the junk out on its own no matter what I did so my doctor suggested I try the 3% to see how well I tolerated it. Luckily it went well and almost instantly I was feeling less sticky in my lobe and I was able to clear the mucous out easier! Have I mentioned that I love my doctor and am thankful he is back?? :)

Yesterday, I had another interview with the newspaper for Jen’s Kids. I think its gonna be a really good article I am just going to have to get used to the fact that they want to take pictures of me with my oxygen on to put in the paper. I know that thats really me but I just hate the fact that I even have to wear it all the time let alone be put in a paper that everyone in the town I grew up in is gonna see. I guess that’s just me being vain but I can’t help how I feel.

I got to go out on pass on Sunday. I went with my SIL and we got pedicures and I got my haircut. It was so nice getting out of the hospital for a little bit and the pedicure was complete bliss! Definitely what the doctor ordered.

I missed Oktoberfest this year which was a huge disappointment but hopefully this time next year I can go and not be on O2!! Let me rephrase that...next year I WILL be going without oxygen!!

Well, I guess that’s all I got for now. Monday is 3 weeks I have been in the hospital but I have strong feeling that I won’t be going home then. Especially since the whole first week I was here was basically a joke thanks to the Dr who shall remain nameless. But we shall see.

Have a good weekend everyone!!!

Finally Feeling Better!

I spent a week with the Dr who shall remain name-less not getting better at all. When in swoops my wonderful Dr on Tuesday tweaked a few things and had me on the path to feeling better almost instantly. Its amazing how having a Dr who knows you and cares to listen what you have to say can have such an impact on how you feel! I truly am blessed to have the CF Dr that I do!

So I am on 3 different abx, 3 days of VERY high steroids, breathing treatments every 4 hours and I just started taking Zen Pep instead of Pancreacarb Ms-8 while in here too. Anyone else on those? I had an overstock of Pancreacarb at my house so I was trying to use all those up before I have to buy the new med but in the hospital they only have the new stuff so we have been trying to get my dosage right. Apparently I am on a "lower" dose than most CFers, I use to take 4 Pancrecarb Ms-8 with meals (or 24,000 units) so thats what's new with me.

I have a newspaper interview that I am doing on Monday from the hospital for Jen's Kids. The 2nd and 3rd rooms are almost complete! Very exciting stuff!!

Well that's all I got for now...sorry that's what a week and a half of the hospital does! Have a great Halloween weekend and everyone stay safe!

Am I being ridiculous?

Well for those of you who don’t know. I was admitted on Monday like I predicted! I had a horrible night of no sleep Sunday night so first thing Monday morning I called my doctor.

Of course as my luck would have it, he was leaving the very next day to attend the CF Conference for a whole week! Ugh! Well I knew I couldn’t wait a whole week for him to return and I didn’t want to chance getting even sicker so I was admitted and will be seen by the Dr who is on-call. Which happens to be the Dr I have had issues with in the past and who isn’t my favorite person in the world to begin with. :(

So, I have been here 3 days and already I have some issues...so please let me know if I am being ridiculous....

Like I said I have been here 3 days and I have only seen the Dr once. The other two times I have been seen by a Physician Assistant STUDENTS. Now I have no problem letting a student come in and do there thing but I would still expect to be seen by the Dr.

Especially because today I was having a little bit of the SOB come back. My nurse told me that the Dr would be back in the afternoon so I could see him then and let him know how I was feeling.

Well around 7:30pm the nurse comes in and tells me that the Dr had ordered a chest x-ray for the morning and some PRN treatments if needed but that he wasn't coming in to see me. I mean WTF?? I felt like I wanted to cry.

I am here to get better but if he never actually comes in to see me what’s the point of being here? And its not like these are PA students who are like almost ready to graduate they still have like another 10 months to go out of a 2 year program!

I just don’t want to be here all week basically twiddling my thumbs waiting for my awesome, wonderful, caring super Dr to be back when I could be getting better instead!

Please tell me...am I being ridiculous? and if I am not being ridiculous what should I do? I don’t want to say something and then have him be rude to me the rest of the week cause god forbid I make him actually come in and do his job! Grr...he makes me so mad!

I think its almost that time...

Yesterday and today I have been feeling a little more SOB than usual. Its almost at the 2 month mark of me being off abx so its not unusual that this is how I am feeling. It just sucks that its like clock work...

I have been feeling so good lately too. I have been going to yoga, I have been out almost everyday with my SIL "window shopping" (wink, wink) cooking dinner every night, doing all my treatments like usual so why oh why do I have to wake up and feel this way? and why can't I stay out of the hospital for more than 2 months??!!

I had planned on going into the hospital Nov. 1st that way I was for sure out by Thanksgiving and Danny's birthday and I would be well through Christmas. Plus I have plans the next couple weekends that I really don't want to miss so me not feeling good is totally cramping my style!!

I know, I know...if I don't feel good I shouldn't push to stay out because that never goes well so I will see how I do today and tomorrow and if I have to call the doctor I will. Just know that I won't be happy about it! :(

Anyway..other than that I am totally loving the cooler weather (when I say cooler I mean its 78! lol) and the lower humidity we are having here in SWFL! I can't wait till we can bust out the sweaters and have some bon fires!! :)

Lung Transplant Center Party

Its already almost been a week but at least my post is better late than never!

Last Friday my mom and I went back up to Gainesville (after being there Wed for a clinic appointment) for my transplant centers 16th anniversary celebration. We drove up for the party that was from 2pm-6pm stayed the night in a hotel (its a 4hour drive from my house) and then woke up the next morning to come home. Needless to say I was pretty much exhausted all weekend from the trip!

I was a little apprehensive about going and im not sure really why. I mean I love all the wonderful people I have met and talk to through my blog and you guys have been tons of help to me in any of the questions or concerns I have brought your way but still I wasn't to excited about going. But my mother thought it would be good for us so up we went!

When we first got there they had guest speakers talking about all the different experimental things they have in the pipeline as far as lung transplants go and its all very exciting stuff! I will have to see about getting some of the pamphlets from my mom and maybe doing a couple post on them.

After all the speeches were done they had food and drinks and everyone kind of mingled around and talked. I met some really nice people who all have had there transplants at Shands. All of them gave me some "pointers" on what they thought the hardest part of surgery was, what to expect etc. This one gentleman in particular I was really impressed with looked like he just stepped off a golf corse (you know polo shirt, khaki pants, shinny silver hair, sun-kissed skin) he looked FABULOUS and he was 10yrs post-tx!!

I also met a girl there who is around my age with CF and she just had her tx like a week or two before. The crazy thing about her story is after we were talking for a bit we found out that she not only lives like literally 2 minutes away from me we also have the same hair dresser! Small world, right?

In the end I am super glad my mom pushed for us to go. It was really nice. Oh yeah...and I won a necklace and earrings in a raffle and I never win anything!! :)

This week has been ok health wise. I finished my 14 days of Cipro. My cough is better but I am still slightly more SOB than usual. I just started for the first time in years Tobi so maybe that will help!

OK..have a few more good days of the week and a great weekend!!

Not feeling to hot

Yesterday I woke up with a sore throat. I haven't had a sore throat in years and it all came rushing back to me on how painful they are! I can't swallow, cough, talk or eat with out being in pain. Hopefully it doesn't last much longer.

I called my doctor and told him I was feeling a little under the weather and he started me on 14 days of cipro so hopefully that helps.

I am hoping I feel better by Saturday because I am going with my SIL and niece to see Disney's Princesses on Ice. :)

In a couple of days it will be a whole month since my "dry run." I kind of thought I would have had another call by now. I just hope I don't have to wait to much longer I am ready to get this show on the road!!

Almost There!!

Less than a week to go and I will home and IV Free!!! WOOO HOOO!!

This will be my 6th and final week on abx and while I am feeling better and my PFT's are actually higher than they have been in like 2 1/2 years (only by like 5% but hey I will take it!) This hospital admission hasn't come without its problems.

It started out with my blood work being all out of whack because of the merrem. But a change of abx helped that out and got me on the right track of feeling better.

About half way into my stay we noticed that I was having some elevated blood pressures. So my doc had me get a EKG and an Echocardiogram. The EKG came back fine but the Echo showed that I have moderate Pulmonary Hypertension. Which if left untreated could cause the right side of my heart to become enlarged. As of right now my heart is fine but I am now taking a med 3 times a day to help and you are never going to guess what it is....VIAGRA!! LOL Apparently Viagra was made to help heart patients originally and it was an accident that they found out what other side effect it has in men...

One of the main symptoms of Pulmonary Hypertension is SOB. So once I started taking the meds my breathing eased up almost right away.

I go to Gainesville Aug. 25th and they are already aware of the hypertension (my doc called them last week to see if they wanted a cardiocath done) which will more than likely raise my score. So while its not a good thing this developed its good that it will raise my score.

The last couple of days I have been taking a diuretic because I was retaining a little bit of fluid so I have been peeing like crazy. I usually have an awesome bladder so this is highly annoying!

This hospital stay has also been smooth as far as nursing goes since I have my "primary care nurses." I basically gave them a list of nurses I trusted and they made them be the ones to take care of me. So I haven't had any issues which is a nice change! :)

I can't wait to get home to Danny and Brodie...I hope these next few days go by fast I miss my boys!

feeling better

Monday afternoon I was re-admitted into the hospital after trying home IV's at home for 2 weeks without much change in the way I felt. I did 10days in patient and two weeks at home and I still didn't feel up to par so I decided to come back in because clearly what I was on wasn't doing the trick! At home I was on Merrem, Fortaz and Amikacin.

On Monday when I got to the hospital my Dr switched my IV abx to Merrem, Cipro and Azactam. Plus I am doing Colistin breathing treatments twice a day.

On Tuesday some of my lab work came back saying that my liver enzymes and my eosinophil levels were high, which he thinks is from the Merrem so he discontinued that all together.

On a cool side note...the first room that Jen's Kids remodeled was finished today so they moved me into it and I am officially the first patient to use it! Its SO nice, I can't wait till they finish all the rooms its such am improvement! :)

Other than that I am just trucking along trying to get better. Oh yeah, my family is coming up here tonight so I can say goodbye to my little brother. Him and my parents are leaving on Saturday to take him up to Ohio for college. I am probably gonna cry cause I am a big fat baby but we are all going to miss him! :(

Bye Jordan I hope you learn lots and I can't wait to see you at Christmas! I miss you already....thank goodness for Skype so at least we can keep in touch that way! Love You!!

Sweet 16

This past week my baby sister turned "Sweet 16." I can't believe she is 16 already, I remember just like it was yesterday when my parents told me I was going to have another little brother/sister. I also remember praying it was a little sister because I already had 2 little brothers and did NOT want another one! LOL I was there in the Dr's office when mom had the ultra sound and we found out together that I was gonna have a sister and we both were thrilled! So, I hope you had a great birthday my Messy Jessy...I love you! :)

Danny & I

Opening a little Blue Box from her Big Sis!

Me & Jess

On a side note I definitely think I will be going back in the hospital on Monday. I would rather go back in for a week and be good and healthy then stop my antibiotics and have to be re-admitted in a month anyway because I stopped to soon.

Also, I think part of my problem why I haven't felt better while being home is because my home nebulizer compressor hasn't been working properly so it wasn't smoking like it should have been! I just realized that yesterday...jeez! I am all good now with a new compressor but its like I have been doing no treatments for the last week and half. Ridiculous!

Tomorrow I am going shopping with my mom. Hope everyone has a great Sunday! :)

:(

Today I had to go to the hospital as an outpatient to get my port re-accessed and the dressing changed (happens once a week.) I usually never have to do this because I have wonderful nurse friends who come to my house and do it for me but they were both busy today and I needed it done, so in I went!

I could have home health come to my house and do it...but believe me when I tell you that was a SCARY experience I never want to have again. The nurse new nothing about accessing a port, down to she touched the needle itself with her BARE HANDS!! Um...hello ever here of sterile precautions when dealing with a medi-port? Jeez...needless to say I don't deal with home health anymore I do everything myself. Maybe that's why I am so tired all the time?

Anyway, once I was done at the hospital I decided to pop into my Dr's office since it is right next to the hospital to see if he could just take a quick listen to me since I am still not feeling to great. It just so happened that it was my lucky day and there was no one in his office and it was a clinic day too! So he actually gave me a full check-up which was really cool since I just showed up.

He says that I have a little bit of wheezing in my right upper lobe and a few crackles in both my uppers which is where I usually have my congestion. He ended up giving me another inhaler to do twice a day like the Advair hoping that will help out without me having to go back on prednisone since today was my last day (thank god!)

We both agreed that if by Monday I am still not feeling up to par I need to be re-admitted to the hospital. I am kinda bummed about this so please think positive thoughts that the next 4 days these antibiotics preform some sort of miracle and I miraculously feel a million times better or its back into contact isolation I go....oh joy.

One more week...

Boy did I call it. One more week of abx for me!

My doctors office called me this morning and said that yes I was to continue with home IV's and oh btw I needed to get to a lab by 4:00 to get drug levels and a bmp done.

Well that's all fine and dandy except Danny took my car to work with him today because we thought I didn't need to go anywhere (my Honda gets WAY better gas mileage than his Ford Lightning SVT!) today and oh yeah he had his keys too!

So I had to call my super awesome SIL and she came and saved the day and took me to get my blood drawn. When it comes to SIL I have to tell ya I got lucky in that category! Stephanie is there every single time I have needed her and I don't think I will ever be able to "re-pay" or give back all that she has done for me, even though I will try! :)

Anyway...I hope this last week of abx does the trick. I need to start feeling better already!!!

UGH...

Well its Saturday and I am supposed to be done with my abx either Monday or Tuesday (can't remember) but I don't think that is going to happen...

I called my doctors office yesterday and of course my doctor wasn't in the office. I love my doctor and wouldn't trade him for anyone in the world but man does that man seem to take a lot of vacation days!!

Anyway I get side tracked...so I called his office yesterday to tell him that I still don't feel 100% and that I think I need to continue my IV's at home for another week. So I am waiting to hear back from him on Monday to see what he is going to do.

I know he will keep me on abx if thats what I think (he is really good about listening to what I think) is necessary, I just don't know if he will keep me on the same abx or switch it up since after 2 1/2 weeks I am still not better...maybe I need another drug cocktail or something to kick this bugs butt!

I have one more day left of prednisone, hallelujah!! That day couldn't come soon enough I am about DONE with it. I am ready to stop being puffy/moody and I am sure Danny is too! :)

Tonight we are going to dinner with a big group of our friends. We are going to Buca di Beppo its an Italian restaurant served family style. Kind of like Carmine's in NYC if anyone has ever been there (I have its delish!!) So I am sure I will have pics to post later.

Have a good weekend everyone! :)

Im miserable...

I am so glad to be home but I am so PUFFY because of the prednisone I am miserable!!

Tomorrow is my last dose of 50mg and then I start to tapper down the dose and I will be completely off them by the end of the week. It can't come soon enough...I usually don't get all the weird side effects that come with being on Prednisone because I am never on it long enough (more than 10 days give or take) or on that high of a dose to really cause a problem. I have never had the mood swings or anything like that.

Until this time...I was on so much solumedrol in the hospital (I was getting it every 6 hrs) and now the prednisone at home, I am finding myself very irritable and annoyed very easily and snapping at my poor husband for no reason! As soon as crankiness comes out of my mouth I realize I am doing it but I can't stop!! :(

My face/eyes are really puffy first thing in the morning and then get a little better as the day goes on but my belly is puffy my hands feel puffy (my rings feel a little tight)....im just BLAH!!!

OK....im gonna go now since I usually don't complain like this on my blog....sorry.

its the weekend...

Well, its been an interesting week for me here in the hospital. The one thing I have been trying to get a hold of the most is my uncontrollable blood sugars due to the Solumedrol that I have been getting every 6 hrs. They have been crazy hi but I need the steroids so what can you do?

Last night I had a little "incident." I take 2 types of insulin Lantus which is the 24hr insulin and Novolog which is the fast acting insulin I take right before meals when needed.

Well last night at 10:00pm when I am getting my bedtime blood sugar checked and my nighttime dose of Lantus (my blood sugar was 117 which was really good for yesterday btw) my nurse says that I was to get an additional 10 units of novolog. I questioned her saying I thought that was wrong and what was my blood sugar from the night before (which it was 211 and I didn't require anything other than my Lantus.) She then tells me that my dr had changed the scale and thats why I was getting the extra coverage. So I said ok and that was that.

Fast forward to 2am when I wake up because I feel very hot and shaky. I grab my glucose meter and check my sugar real quick and was shocked when it came out to be 20! I hit the call light and quickly began to eat some oatmeal raisin cookies Danny had luckily brought me the night before and cracked open a Coke that I had sitting there from dinner.

The nurse came did whatever she had to do to follow protocol and then her and the charge nurse came in to tell me that she was really sorry but that she had read my chart wrong and that she wasn't supposed to have given me the 10 units of Novolog after all. Weird I was right....

Needless to say my Endocrinologist was NOT a happy camper this morning when he came in to see me and he also said that unless they say they have specifically talked to him I am only to get the Novolog at meals just like it said in my chart the whole time.

Do I have to ask the question again of why do the weird things always happen when I am admitted? I mean I guess we can just thank god that it happened to me and not some little kid who might not have woke up or recognized that they were feeling low and eat something. Its just scary sometimes....

in the hospital

I was admitted Tuesday because I knew last week I was starting to feel crappy but I wanted to hold out till I got back from our 4th of July in Orlando.

Well needless to say I think I waited to long because I have felt like complete CRAP the last 2 days. My x-rays show that I have a few mucous plugs which I already figured I had anyway because I could feel little hard pieces when I coughed a few times (sorry about the tmi there.) So my first night here I was awakened every hour through out the night for breathing treatments so needless to say I was exhausted ALL day yesterday.

Then this morning I awoke thinking I felt a little better but soon after my first treatment/vest I started feeling really tight and my sats weren't staying above 90 and I was on like 8L of oxygen. So Dr. Faverio gave me 100mg of solumedrol IV and treatments every 2 hours and that did the trick to open me up and raise my sats and lower the oxygen. We both think that the plugs are moving up and out and that is what is causing my sob. So hopefully they come out with out anymore trouble and I can get cleared out!

My blood work also came back that I was a little dehydrated and that my electrolytes where low so that was a little weird I have never had that before. So I was on fluids for a little bit yesterday and then today he started me on some pill to help with the electrolytes. So we will see...

Anyway...that's all that is going on right now. I will let you know how I am doing in a few days. My goal is to be home by the 16th because my mom's birthday is the 17th so please think good thoughts that I can be home for that!

2 more weeks...

Well I went to my appt and just like I thought my doctor is extending my abx to 2 more weeks! I thought it was going to be for just one more week so I was a little surprised when he said 2 but I'm fine with it as long as I feel better.

He did switch up my schedule a little bit so I could get more sleep which I appreciate! Plus he added an abx so now I am on 3 total. Ceftazidime and Azactam every 8hrs and Amikacin every 24hrs. So its a really do-able schedule and I am not anywhere near as tired as I was last week.

After the first day of all 3 abx I already felt tons better and noticed a vast improvement to my SOB! The only con to this whole 3 abx thing is it is really making me itchy and I HATE being itchy!! When I am in the hospital I get IV Benadryl if I am itchy and at home I don't. Unfortunately PO Benadryl doesn't help at all so I am kind of just stuck here being miserable! :(

I got to visit with my cousin Maria the past few days cause her family was in town from NY so that was really nice. I hadn't seen her in over a year. I am used to seeing her a couple times a year with her coming here and me going there and this whole can't go anywhere cause I am on the transplant list is seriously putting a damper on my traveling schedule! I can't wait till I can once again go on vacation other than somewhere in the state of FL!! :)

I only have 3 more movies to go and I will have seen all 10 best picture nominees!! The Blind Side was amazing (knew it would be) and I really enjoyed Up in the Air (love me some George Clooney!) I didn't like The Hurt Locker really at all which is surprising cause I heard it was a good movie...it just really dragged on and I honestly was glad when it was over.

Well I am almost done with my last abx so I am going to bed soon. Danny and I and his brother and his brother's wife are all going to dinner tonight at a restaurant called Rum Runners. We have only been there once before on our first wedding anniversary but really liked it so it should be nice. I hope everyone has a great Valentine's Day and that you all spend it with someone special!! :)

Good Night!