Pasta in Olive Oil with Pancetta, Shallots and Garlic!!

Well I have FINALLY decided to dust off the old blog and and get back into the habit of cooking and then documenting my food here. Its not that we have been not eating around here, trust me on that one!

It all started with my camera's battery charger deciding it didn't want to charge anything anymore which left me without a working camera. Of course I had my trusty IPhone but unfortunately with all of the meds I am on because of my transplant my hands shake a lot and makes for some VERY blurry pics and I just didn't want to post pictures of my food that tasted SO good but looked SO crappy once I snapped the picture!

Then I had a few months of being in and out of the hospital due to severe nausea caused by a lovely med I am on that just hates me and causes me all kinds of problems! So I literally at one point didn't eat really anything of substance for like a week because everything I ate, smelled,  or even looked at made me sick so the LAST thing I wanted to do was cook and blog about it. Luckily (knock on wood) I am better and working at trying to pack on some of the calories I lost PLUS I got a new camera for Christmas so I am ready to rock and roll!! :)

I have SO many recipes that I have made recently that I want to share with you PLUS I am attempting to channel my inner craftiness and I borrowed my mom's sewing machine so that I can TRY and attempt a few DIY projects around my house. I am so inspired when I read some of these amazing moms out there who can turn nothing into something fabulous and if I can even have a remote oz of that I will take it! LOL I will be trying to take pics of my sewing projects along the way and post about them (good or bad) so keep your fingers crossed for me...

Today, I thought to myself ok today when you make lunch document it so you can get your first blog post of the year up...mid Feb I know but better late than never, right?

So anybody who knows me knows I love to cook but am still pretty terrified if I don't have a recipe and I think its cause I just don't trust myself or something I don't know. My grandma can go into a kitchen, a dash here, a pinch there and out comes a fabulous meal every time! Me not so much.

So when I was hungry this afternoon but didn't want the old stand by of soup and a sandwich I decided I would look through my pantry and fridge and just try and make lunch by "winging it" and I don't mean to pat myself on the back or anything (ok I do!) but I think I did a pretty good job!

Here's the ingredients I came up with:

Spaghetti noodles~ 4oz (about half a box)

Olive Oil~ 2 tablespoons, or more as needed

Parmesan Cheese~ 1/2cup grated from a block of Parmesan

Pancetta~ 4oz (you could use bacon here if you don't have the Pancetta on hand)

1 Shallot~ chopped

4 cloves of garlic~ minced (can you tell I LOVE garlic?)

Fresh Parsley~ about 2 tablespoons....just to add some pretty color! 

Salt and Pepper to taste

Directions:
1. Bring a pot of large salted water to a boil.
2. While that gets started go ahead and put the oil in a medium sized skillet over medium heat. Add the shallot and minced garlic, stirring occasionally. Then add the pancetta and cook until nicely browned (about 10 minutes.) Turn off the heat.
3. Cook the pasta in the boiling water until tender. Drain it (or I just scoop it out and put it right in with the olive oil and pancetta) reserving some of the starchy pasta water.
4. Toss the pasta with the pancetta, shallot, garlic and olive oil. Stir in the cheese and parsley. If the mixture is dry, you can either add a little of the pasta water (which I did) or a little more olive oil. Taste and then adjust the seasoning if needed with salt and pepper.

**You most likely wont need a ton of salt because both the pancetta and parmesan have a salty flavor but I did end up adding a little bit to mine in the end! 

Well, there you have it. Nothing fancy but very flavorful (how could it not be with ALL the garlic...but can you really ever have too much garlic??) and I for one had a second helping!! 

I hope that since I have been away for so long I still have some people willing to check out my little old blog from time to time and I promise that if you come back and read I will post! 

Just heard the hubby pull up so I am off to start dinner! Its the Pioneer Woman to the rescue for tonights menu....more on that later....

Let's Try This One More Time!! Easy Crock Pot Meal...

Well hello. Shall we try this blog thing again?? Every time I (think) am home for good and ready to start cooking again....BAM! Just like that something else happens and I am back in the hospital.

 Last year was AMAZING and I was hardly ever sick and so far this year I have lost count with the amount of times I was admitted to the hospital. If I wasn't admitted I was sick as a dog at home not wanting to cook anything and BARELY wanting to eat anything! Not a good combo I can assure you! 

So I get home on Sunday night with stuff that I have already planned on making once I got home I just needed to go food shopping (I was in the hospital 3 weeks I had A LOT of time to look up recipes!) 

I was REALLY craving some Shepards Pie that my one good friend Amanda was telling me she makes for her son but unfortunately when I went to cook dinner Monday night my feet where the size of watermelons and there was no way I was gonna be able to stand in the kitchen and make dinner so I called the hubby and told him my dilemma. When he got home from work he quickly showered while I made him a list (a very short list he isn't the best grocery shopper when I am not with him!) of things to grab from the store. On that list was Publix Fried Chicken that we could just eat that night without having to cook anything since it was already so late (and Publix fried chicken is to DIE for!) plus I had decided that since my feet swelling was a problem that was worse in the afternoons I planned to do a crock pot meal that I could throw in the pot in the morning while the feet where relatively "normal" size and not very painful and by dinner time when they were gi-normus (yes that is a word) all I had to do was some last minute touches so I wasn't on my feet very long! Am I genius or what? 

Well, let me just say that the meal I picked which I found on the Crockin' Girls Facebook page (it was one of their Crockin' Monday Videos) was I think the easiest crock pot meal I have ever made. You know how sometimes with crock pot meats they make you sear the meat or cook the chicken first or whatever, well you don't have to do that with this recipe which saves a step and another pot you don't have to clean! Also, everything just gets mixed right in the crock pot I seriously had no clean up except what I was throwing away in the trash. Amazing I tell ya..

So here is the recipe for what I put in the Crock and then I will tell you what I made to go along with it! 

Little Meats and Gravy

Ingredients

• 2 Pounds of chuck or stew beef, cut into 1/2-inch pieces
• 1 Package of onion soup mix
• 2 Cans of low sodium cream of chicken soup
• 2 soup Cans of water
• 1 Package of cooked noodles, rice or potatoes for serving

**I served ours over rice cause thats what we had!!**

Directions

1. Step One

   Combine all ingredients into 6 quart slow cooker; stir.

2. Step Two

   Cover and cook on LOW for 8–12 hours or on HIGH for 5–6 hours. If you've frozen this recipe you can cook it for 10-12 hours on LOW.

3. Step Three

   Thicken, if desired, and serve over noodles, rice, or potatoes.
   **I think all said and done mine was in the crock for about 9 hours on low and it was perfect!**

(This was when I was just putting it in and stirring all the ingredients together)

Then as I said before I chose to serve this over rice cause that's what we had available in the pantry and then for the veggie part of the plate I decided on fresh green beans (cause quite frankly I LOVE green beans and could eat them every night) but have kind of gotten in a rut with just throwing them in the oven with some garlic, olive oil, some S&P and roasting them so I wanted to try something new that I made once before when I was in NY on vaca but haven't made here at home yet. So I gave it a whirl tonight to see what the Dear Hubby would think...and luckily he approved! :) 

Green Beans w/ Mushroom and Shallots

Ingredients

• Fresh green beans, ends trimmed
• 2 tsp olive oil
• Button mushrooms, sliced
• 1/2 a small shallot, sliced into thin rings
• 2 cloves of garlic
• Sea salt and freshly cracked pepper, to taste

Directions

Add the green beans to a pot of boiling water and cook for 3-4 minutes. 

Drain and rinse with cold water to stop the cooking and to retain the bright green color. Set aside.

Heat the olive oil in a skillet over medium heat. Add the mushrooms and let them cook (without stirring) for 3-4 minutes; stir and add the shallots to the skillet. 

Cook the shallots and mushrooms for 2 minutes before adding the minced garlic and green beans. Cook, stirring constantly, for 1 minute or until the green beans are nice and hot. Season with sea salt and pepper, to taste.

(YUMMY....these where very tasty!)

Then, of course you know me I had to take a picture of my final plate along with my (don't judge) Pillsbury Grand Buttermilk Biscuits from a can which I slathered in honey before eating! :) 

Quick, easy, delicious, and everyone was happy when dinner was finished and the best part is I have lunch for tomorrow that I am VERY excited about! WIn, WIn! 

  

That is all I got for you tonight. I hope you try this meal and if you do try it let me know what you think! I haven't decided if I am going to use the crock pot again tomorrow or if I am going to make that Shepards Pie finally. Either way I am sure to take some pictures and hopefully I can crank out another blog to you guys so you can see what I am cooking up! Good Night!! :) 

rATG and things..

I know I said I would update up all once my 5 day treatment was over...but once I got home I still had the body aches and slight itchiness that went alone with the drug. So I was in no mood to type an entry. Plus I was on a temporary "house arrest" since the rATG completely wiped out my immune system so I was told to stay aways from large crowds for a while!

I go back up to Gainesville on the 22nd of August to do another bronch and hope that all the rejection is gone! ***Everyone cross fingers***

Then at 1:45 I have an appointment with the vascular surgeons who worked on my leg...I have been having some swelling in my left foot and I just want to make sure everything is all good. So at 1:45 I have a ABIS test done to measure the pressures in my leg and then tuesday morning and 9:20 we have an actual appt with the dr who will go over the test results....and then we will be heading them!! :)

The last couple of weeks have been kind of boring for me being locked in the house and everything but its over now so I am a happy camper! I am eager to get back to the gym couldn't do that the last 2 weeks either so I am sure all the soreness I worked through all ready is gonna be back in full force!! Ouch...

The only other new thing I have been doing is seeing a massage lady once a month to work on my leg/foot pain and the pain I get in my lower back....it seems to be going good. I figure since I have the numbness in my foot/ankle/leg sometimes that the massage is good to getting the circulation moving around those ares again and I am hoping the feeling comes back!

Also, I used to write on this blog all the time because that's all i did was write about things that were going wrong with me. Well now that that has faded I think I am gonna try and change my format a little. I will still update on my health cause u know we all still have our ups and downs there just not as frequent!

So since I LOVE to cook every night and my friends are always asking for the recipes I figured every night after dinner (or lets be honest maybe the next morning) I will post the pictures of what we ate plus the corresponding recipe to that picture! Plus I am in the middle of re-doing some of our rooms so I will post pre and post of those projects as well!!

Well what do you think would you read a semi health/semi cooking/semi decorating blog from me?? Let me know what ya'll think!! :)

Its been WAY to long...

I don't even know where to begin! Its been so long since I wrote a blog and everyday I tell myself ok I am gonna write one and then I just don't.

I have been feeling SO great lately and am hardly ever home during the day anymore and thats when I usually wrote my blog post! But tonight I was like ok this is getting ridiculous, sit down and write something....so here it goes! :)

In the last month, I had my 6 month transplantaversary, my 4 YEAR wedding anniversary, been to Orlando twice (once for a the weekend with Danny for a Disney trip for out Anniversary and once for a week with my parents at there time share) both trips were awesome and I had a blast!

I think the best part for me about Disney was the fact that we got there at 8:30am and didn't leave the park till 10:30pm and I walked ALL day with out being out of breath, tired or needing any breaks besides when we stopped for food/drinks. My brother-in-law who is a firefighter actually started complaining about his feet hurting around noon...by the end of the day I told him if I had to hear about his feet one more time I was gonna punch him in the eye!! LOL

A few weeks ago I joined the gym around the corner from house. I started with just doing the treadmill for 30 minutes and now am up to a little over an hour there doing both the treadmill and weight machines for my arms and legs. I go pretty much every other day and I really enjoy it. At first I was SO sore but now its much better and I can feel myself getting a little stronger every week! I have finally gotten brave enough to try a spin class so I think my SIL and I are going to try a class sometime next week. The only sucky thing is the class is usually at like 9am and I am SO not a morning person and neither is my SIL Stephanie! But I am willing to get up and give it a try because everyone who takes the class just loves it.

I think I mentioned before that Danny was re-doing the downstairs bathroom and guest room. Well he has been working so much that its taken awhile to get things done but the bathroom is FINALLY done and the bedroom is almost done so I will try and get pictures up of the final product....I just LOVE my bathroom! :)

On a sad note a good friend of mine that I met last year past away this past Sunday. Sara lived in my town and had 2 tx's in Gainesville where I had my surgery. About 3 weeks ago our Dr sent her home with nothing else he could do for her chronic rejection and after being home for a week they called in hospice. On June 17th, Sara and her boyfriend Jesse were married in a little ceremony outside there home and on the following Sunday (June 19th) she passed away. I got to see her and say goodbye on Saturday and I have to say it was very heartbreaking for me but I am glad she isn't suffering anymore. Nobody should have to go through that...the person or their family. Its very sad. She was such a loving, caring and kind person and if you knew her and were lucky enough to call her your friend then you know just how special she was. No matter how sick she was she always took the time daily to text me to see how I was doing and was truly 100% happy for me that I was doing well and living life to the fullest...and I honestly don't know how she did it cause I don't think I am that type of person....but hopefully I can take a little piece of Sara with me and strive to be more like her. The world would be a much kinder place with more people like Sara in it.

On that sad note (now that I am crying once again) I think I will end my post for tonight and I will really try to update more often! Tomorrow I will try to get some pictures up of my 2 mini vacations when I get home from the gym!! :)

Good Night!!

XoxoX

Last Week...

Well last Monday my SIL Stephanie took me back up to Gainesville for an x-ray to see how my little lungies were doing and he ended up scheduling a bronch for that afternoon and I was admitted again! :(

Steph spent the night with me and then headed home the next morning after we woke up. I am so lucky to have a SIL like her...she is ALWAYS there when I need her no matter what!

Unfortunately, we aren't entirely sure what is going on with me. When he does an xray and bronch it looks like pneumonia in the left lung but I have had no fevers at all (knock on wood!) and my biopsy's keep coming back negative for rejection but for some reason I don't think he is happy with those answers and thinks something else is going on! He said infection/rejection can look the same in a bronch so sometimes its hard to tell. So at the moment I am on IV cefipime twice a day and while I was admitted into the hospital I did 3 days of high solumerol IV and now I am on a prednisone tapper. Oh I am also on coumadin for a month (hello bruise city!) because I had a CT scan last week that showed a small blood clot so they are treating me for that as well! I tell yeah if it isn't one thing its another! :(

Easter was great. Dinner with my family was awesome and I am glad I wasn't in the "Get Well Hotel" as one of my friends calls it! I was there for 4 days last week but was able to leave on Friday to join my parents and little sister in Panama City Beach for the weekend to visit my Aunt and Uncle! It was a nice but WAY to short of a trip....next time it will have to be a longer

visit and maybe Danny can go too!

Our little family at Easter!

Me & Danny! :)

Me & Jessie in Panama City Beach!

Speaking of Danny...while I was away my awesome husband checked some things off his Honey-Do list and painted/added chair-rail to the living room and dining room. I am so thankful to have a husband that is handy AND motivated to actually do the projects that I think up in my head! :)

boring living room from when we first moved in....

slowly getting there...

Dining room from when we first moved in...

Now! :)

Well, thats all I got for now...I am on IV's for the rest of the week and have to go to a clinic appointment on May 11th so we will see what he says then. I have a meeting tomorrow for Jen's Kids so we will see how that turns out. The hospital unfortunately hasn't done a darn thing while I was away so we are meeting to decide where to go from here. I am kind of disappointed in them that they dropped the ball so we will see.

Anyway....have a great week everyone!! XoxoX

Twelve days just FLY by...

I just looked at blogger and realized I haven't updated in 12 days!! Geez-louise!

Where to start...well I got my biopsy results back from my bronch a couple weeks ago and it was NEGATIVE for rejection!!! Woo-Hoo! I love hearing those results! :)

We had and awesome time at our friends wedding on Sanibel. It was so nice to "get away" for a night even if it was only an hour away from our house. Lounging by the pool with a RumRunner in my hand is the way to relax in style! Unfortunately, we didn't get to do the parasailing thing because my doctor said NO until my sternum is "completely" healed...bummer! But one day I will...

Us and the Newlyweds!!

Me, Danny, his brother Troy & wife Stephanie

Me & Danny <3

View from our room! :)

The next few weeks are jam packed for me. We have Easter next weekend, next week I think I am going back to Gainesville (I swear I am always there!) then the following weekend me and my family are going to Panama City Beach to see my Aunt and Uncle. Then May 4th I am riding up with my dad to Ohio to pick my little brother up from college. Then that following weekend is Mother's day....and in the middle of ALL that I go to physical therapy for 2 hours three days a week!! Im telling ya I am a busy girl!! :)

Man I am exhausted just thinking of all I have to do! LOL I just got home from PT so I am gonna straiten up my bedroom a little bit and then jump in the shower. I need to have dinner done a little early tonight cause we have to go to the grocery store after dinner and I don't want to be going super late!

Have a great Monday everyone.....

XoxoX

Gainesville Bound...

I was supposed to already be up in Gainesville as of yesterday because I had a clinic appointment this morning. BUT...the last couple days I could feel junk rattling around in my chest and because I still have a stupid hole in my neck cause of the wonderful trach I had (can you here the sarcasm??) it makes it VERY difficult to cough anything up! It basically gets stuck in my throat and its horrible. The little mucous I managed to force out luckily was clear/to a very light yellow so I wasn't to concerned. But I did call the coordinator yesterday to see about having a bronch Wednesday afternoon after clinic to suck all the junk out. I just don't want it brewing down there in my lungies and causing a bigger issue than it needs to be...I want it outta there!

SO, after my coordinator called me back with the fabulous news that my Dr couldn't fit me in today for a bronch. They cancelled my clinic appt and are just having me come in at 8am tomorrow morning for bloodwork and a bronch instead. Which is all fine and dandy except now I have to wait one more day of feeling congested (which I don't like btw! I have had months of normal breathing I like it that way!) plus I had to re-configure my ride situation. Luckily my SIL is awesome and her boss is awesome and gave her the night off to help me! Cause lets be honest I can't drive myself home after a bronch... :)

I am exhausted though! The last couple nights when I lay down is when I REALLY feel the congestion so it keeps me awake. Last night I even tried to sleep kinda sitting up and that was little help. So I am just hoping (an praying) that the bronch fixes everything and I will be sent home a happy camper. Because two of our really good friends are getting married Friday night out on Sanibel Island and I can't wait!! We got a room out there and everything (the resort is like 45min from our house and with an open bar till 2am we thought it best to stay there!) so we are gonna take full advantage and lounge by the pool....im even trying to talk Danny into parasailing with me but he is afraid of heights and being a sissy about it! LOL The man can walk not tied to anything on a roof beam but cant go in the air strapped to his wife....WTH! :)

I will definitely have pictures from this weekend that I will post once we get home. Until then I am gonna finish packing my bag for Gainesville and wait for my SIL to get here so we can hit the road!! Have a great rest of the week.....XoxoX

Busy Week!

Hello! I think I told you all in my last post that I was scheduled for a bronch/biopsy on the 24th and then I had other appts as well with other Dr's since we were up there. I figured get everything done in a couple days then we don't have to drive to Gainesville for awhile.

Well that was a great plan until my transplant Dr called last week and wanted to move my bronch from Thursday morning to Monday morning. So needless to say we had to drive to Gainesville Sunday night to sleep in a hotel, woke up had my bronch (first one since my trach has been removed I will get more into that in a minute) slept in recovery for a couple hours, was released to go home, had lunch at Fridays, got in the car slept some more and then finally arrived home! AND because we still have all my other appts that I made we get to do it all over again on Thursday and Friday minus all the sleeping since I am not having another bronch!

Its not so bad I just hate being in the car for HOURS....especially if its just me and one other person because then I feel like I have to stay awake and talk to keep them company when all I really want to do is sleep so the trip goes by faster!! Ever since I was a kid when I go on road trips my eyelids get very heavy and I am usually asleep before we have left the driveway! LOL Happens every time.....

I don't have the results of my biopsy yet but all my blood work came back ok and Dr. Baz said my lungs looked really good and that they were clear! Now onto my bronch experience...this was my first bronch post-trach and the first time going in through my nose so I wasn't entirely sure on what to expect.

First of all, the lidocaine breathing treatment taste gross let me just throw that out there. SO then my Dr comes in we chat for a minute he asks how im doing I get a few Rx from him etc., he tells the nurse to give me the meds (300mcg of Fentanyl and 3mg of Versed) and then he basically starts the procedure right away. So I felt him numbing my nose and while I don't really remember the whole procedure I do recall bits and pieces and I could feel some of it too. So I think if he gave me the medicine and waited I don't know 5 minutes maybe I would be more out of it than if he just started right away. Plus I think next time I am gonna see if he can give me 4mg of versed since I know of other people who get DOUBLE that amount! He can be so stingy when it comes to pain medicine and things like that....

Other than being sleepy for the rest of the day the only other side effect I had was a minor sore throat but that only lasted the rest of the day when I woke up Tuesday I was fine. One of the things I talked to my Dr about was the fact that im not happy with my weight....all 92.8 pounds of it! He asked me how my appetite was and I said that it was ok but not great so he gave me a Rx for Megace. Has anybody ever taken this before and if so how did it work out?

Onto more exciting stuff other than bronchs and weight gaining....we are almost done with the downstairs bathroom! Danny did the first couple coats of paint Sunday and Monday while I was out of town and hopefully if he has time this weekend he will do the glazed sponge paint on top of that! It looks SO good already I love my beach theme bathroom! :)

I went to my first post-tx yoga class on Friday and it was AWESOME! I also started physical therapy last week too. I will be going to PT 3 times a week where I will walk the treadmill/maybe start on the elliptical, work on my leg and foot a little since I still have a lot of numbness there from my arterial bypass surgery and then the BEST part of all is the massages since I have been having so much trouble with my lower back lately. I have an appt today at 4! :)

Well I think this post is long enough....I probably wont post again till I get back from Gainesville so I will let you all know then the results of my biopsy and how all my other appts went! Have a good rest of the week!

So...good news and not so good news...

On Sunday I woke up feeling VERY congested around my trach. NOT my lungs I just felt like crap was getting stuck in my trach and it was driving me crazy! I was coughing up paper towels full of mucous out of my trach (very gross by the way...you would think after 29 years mucous wouldn't gross me out so much but it does!) Finally I said to Danny should I call my coordinator and of course Danny being Danny says "I don't know"....thanks babe!

So I said for him to grab my thermometer (I check my vitals 9am and 9pm everyday I don't know if that is standard with everyone or not but if my temp is EVER 100 or greater I am to call immediately no matter what time of day) I didn't think I had a fever but I thought I will check it anyway and then decided if I am gonna call the coordinator. That was as 1:30pm and guess what I had a fever 100.4 to be exact! So I called my coordinator and of course they admitted me an hour later.

After x-rays and blood work it was determined that I have a little bit of pneumonia in my right lung. :( I of course was upset I mean I have done EVERYTHING right and worn my stupid mask everywhere how could this have happened? Well apparently I still have Psedomonas in my sinuses and that dripped down into my pretty new lungs and caused the pneumonia. Wonderful.

I was also upset because as you all know I was supposed to go home this weekend and I thought for sure this would delay my home coming by another week or so at least. Well I saw my wonderful Dr this morning and he said that I was going to be released on Friday and that he wanted me to do one more week of home IV's. I said Home, Home or tx-housing home....he says let me think about it.

Well my coordinator JUST called me because she wanted to know who I used for home health cause my Dr wanted her to set up my home health...that means Friday morning I get to go home!!! I haven't been to my house since the beginning of October and I am SO excited you have no idea!!!! :)

So I have to do IV's for a week...big deal I have done them before I get to go HOME!!! WOO HOO!! Thanks to everyone out there who put out all the good going home vibes for me I (and Danny) appreciate it!!!

XoxoX

P.S. Another piece of good news I found out the other day is my dr told me that my latest culture came back that I was sensitive to a bunch of abx which is great news so we can kick this pneumonia's butt! ;)

Almost home free!!!

Saw my doctor today and the game plan is on Tuesday I am going to have a bronch and biopsy done AND drum roll please......get my Trach out!!! WOO HOO!! You have know idea how bad I want this thing out. Three months is entirely to long to have a foreign object protruding from your neck. Very annoying!

If the test results from my biopsy are all clear then next weekend Danny and I are moving on out of here! I can't wait to sleep in my own bed. The bed here in the apartment we are staying at SUCKS! I wake up every morning with a terrible back ache. I know the first night at home is gonna be like sleeping on a cloud...our mattress is awesome and I miss it!

So if you could all think clear positive thoughts for me I would appreciate it. I wanna go home and Danny needs to get back to work! :)

Have a great weekend everyone!

XoxoX

weekend update!

I hope everyone is having a great weekend!

Wednesday I went to see my CF Dr and of course he didn't see anything in my ears that looked out of place. So he gave me the card of a ENT that I go to on Monday for a hearing test and office visit. Hopefully I will know more info then.

I got a call from Shands Thursday afternoon and when my phone rang I thought I was getting my call but no such luck! They were calling to tell me that the last appointment I went to I guess something funky showed up in my sputum culture so instead of my Nov. 17th appointment they want me to come back Sept 29th. I was in my car when they called so thats why I don't know exactly what they found (cause I couldn't write it down) but I wanna say its some kind of Aspergillus but don't quote me! If it was Aspergillus, I would think they would know how to treat that with out me coming back in that's why im not sure I heard that correctly. But I will let you know for sure once I get back from that check-up!

We rented a bobcat this weekend and Danny and his 2 brothers and his best friend Curt have been outside ALL day today digging up these nasty root systems that are in front of our house left over from some Australian Pines we cut down. The one stump in particular is being a real pain the butt and not wanting to come out! He will be back out there tomorrow working on it too.

The yard is all torn up right now but when its done it's going to be BEAUTIFUL!! I took some before pics this morning so I will post before and afters when the whole project is complete! :)

Went to the flea market this afternoon with my mom, aunt and sister and then we had lunch at a yummy Irish pub. I love some fish and chips and if its on the menu I usually order it. I love seafood but Danny doesn't so I rarely get it at home.

Tonight is my GNO dinner! Its been awhile so I can't wait to see some of my favorite ladies! I am sure I will have pictures to post later. Have a good one everybody!

Home again...

Well I am home again. Got here around 11:00pm last night. Did my vest (first therapy I got all day, it never occurred to any one in the hospital to give me a breathing treatment or anything while I was in the hospital for 12 hours waiting!) ate a bowl of ice cream then snuggled in my blankets and went to sleep and didn't wake up until 11:45 the next day! I was exhausted!

I then did my morning treatment routine, went to a late lunch with Danny and his parents then went home and took a short nap before getting up and getting ready for some of our friends to come over for a game night. It was tons of fun and I really enjoyed having everyone over. Tonight marks the first night EVER the boys actually won fare and square without cheating, so it was definitely a night full of laughs. We played Trivial Pursuit: 90's Edition and we always play any game boys vs. girls. We have way to many couples to just play couples vs. couples...there is never enough game pieces to do it that way. Plus its always fun to battle between the sexes! It definitely gets loud thats for sure. :)

Tomorrow we are going out shopping for all the things we noticed we needed and didn't have for my dry run yesterday. I guess that is the positive thing that came out of being able to go home, we will be more prepared next time. I know I had 2 1/2 years to prepare for yesterday but until I actually went through it I had know idea really what I would need until I went through it....even though I was told by other CFers who have already been down this rode. Now I know first hand the things I will need!

I wish I could say that the moment I heard it was a no go because one of the lungs had pneumonia I had a happy thought that at least another family was going to receive a wonderful gift but I didn't. I just cried (for the first time that day though!) because I was really sad that I had been there for 12 hours and now I was going home and I kind of feel bad that my first reaction was to feel bad for myself....

Hopefully the next call won't be to far off behind this last one. I was really liking the idea of being able to have my surgery and be home in time for Thanksgiving and Christmas!!

Well all, I am going to finish my vest and hit the sheets! Good Night!! :)

Home Sweet Home

I got home last night. It was SO nice to sleep in my own bed and to be able to sleep through out the night with out any interruptions!

I had a little trouble with my new prescriptions at the pharmacy last night. I am now on Revatio (viagra) and Aldactazide (diuretic.)

When Danny went back to the pharmacy to pick them both up he was only able to get the Aldactazide because the Revatio needed a pre-authorization from my doctor. Danny asked the pharmacists how much it was, if for some reason insurance doesn't cover it and its $1500 for one months supply!! Can you believe that? That's ridiculous...I called my doctors office this morning and informed them that if they can't get it authorized they are gonna have to find another medication cause I can't afford that!

Tomorrow is my check-up in Gainesville. I don't have any test scheduled but that doesn't mean anything they sometimes make me do a 6 minute walk and PFT's anyway. I will update tomorrow night and let you all know how it goes!

Almost There!!

Less than a week to go and I will home and IV Free!!! WOOO HOOO!!

This will be my 6th and final week on abx and while I am feeling better and my PFT's are actually higher than they have been in like 2 1/2 years (only by like 5% but hey I will take it!) This hospital admission hasn't come without its problems.

It started out with my blood work being all out of whack because of the merrem. But a change of abx helped that out and got me on the right track of feeling better.

About half way into my stay we noticed that I was having some elevated blood pressures. So my doc had me get a EKG and an Echocardiogram. The EKG came back fine but the Echo showed that I have moderate Pulmonary Hypertension. Which if left untreated could cause the right side of my heart to become enlarged. As of right now my heart is fine but I am now taking a med 3 times a day to help and you are never going to guess what it is....VIAGRA!! LOL Apparently Viagra was made to help heart patients originally and it was an accident that they found out what other side effect it has in men...

One of the main symptoms of Pulmonary Hypertension is SOB. So once I started taking the meds my breathing eased up almost right away.

I go to Gainesville Aug. 25th and they are already aware of the hypertension (my doc called them last week to see if they wanted a cardiocath done) which will more than likely raise my score. So while its not a good thing this developed its good that it will raise my score.

The last couple of days I have been taking a diuretic because I was retaining a little bit of fluid so I have been peeing like crazy. I usually have an awesome bladder so this is highly annoying!

This hospital stay has also been smooth as far as nursing goes since I have my "primary care nurses." I basically gave them a list of nurses I trusted and they made them be the ones to take care of me. So I haven't had any issues which is a nice change! :)

I can't wait to get home to Danny and Brodie...I hope these next few days go by fast I miss my boys!

Front Entryway

Christmas will mark the 3 year Anniversary of us being in our house and it is just now starting to feel put together like a real house. Anybody who owns a home knows it takes awhile to get it the way you like it because unless you have an endless cash supply (which we don't) you can't just go out and buy everything you want in one day. Plus if I am being honest I am not the greatest at piecing things together!

I have always known that in my my front entryway I wanted some sort of table/mirror combo but both are pretty expensive plus I never saw anything I just had to have. Well, a few weeks ago I noticed JCPennys was having a great sale (I go on there periodically just to window shop) and one of the tables I had been eyeing was lowered quite a bit so I knew I had to snag it before it either went out of stock or the sale was over.

Then once it was delivered and Handy Danny put it together I went on the hunt for the perfect mirror. I didn't know exactly what I wanted but I knew once I saw it I would! My SIL and I found the mirror and the two accessories at Pier 1....LOVE that store! Everything in there is super awesome....so without further delay here is my new and improved entryway...its not done but it is a major improvement to the blank space that has been there the last 3 years! :)

p.s. I am being re-admitted tomorrow when ever the hospital calls me and tells me there is a bed available. Lets hope nobody screws up this time and its a relatively calm admission and I am in and out in no time! :)

Sweet 16

This past week my baby sister turned "Sweet 16." I can't believe she is 16 already, I remember just like it was yesterday when my parents told me I was going to have another little brother/sister. I also remember praying it was a little sister because I already had 2 little brothers and did NOT want another one! LOL I was there in the Dr's office when mom had the ultra sound and we found out together that I was gonna have a sister and we both were thrilled! So, I hope you had a great birthday my Messy Jessy...I love you! :)

Danny & I

Opening a little Blue Box from her Big Sis!

Me & Jess

On a side note I definitely think I will be going back in the hospital on Monday. I would rather go back in for a week and be good and healthy then stop my antibiotics and have to be re-admitted in a month anyway because I stopped to soon.

Also, I think part of my problem why I haven't felt better while being home is because my home nebulizer compressor hasn't been working properly so it wasn't smoking like it should have been! I just realized that yesterday...jeez! I am all good now with a new compressor but its like I have been doing no treatments for the last week and half. Ridiculous!

Tomorrow I am going shopping with my mom. Hope everyone has a great Sunday! :)

:(

Today I had to go to the hospital as an outpatient to get my port re-accessed and the dressing changed (happens once a week.) I usually never have to do this because I have wonderful nurse friends who come to my house and do it for me but they were both busy today and I needed it done, so in I went!

I could have home health come to my house and do it...but believe me when I tell you that was a SCARY experience I never want to have again. The nurse new nothing about accessing a port, down to she touched the needle itself with her BARE HANDS!! Um...hello ever here of sterile precautions when dealing with a medi-port? Jeez...needless to say I don't deal with home health anymore I do everything myself. Maybe that's why I am so tired all the time?

Anyway, once I was done at the hospital I decided to pop into my Dr's office since it is right next to the hospital to see if he could just take a quick listen to me since I am still not feeling to great. It just so happened that it was my lucky day and there was no one in his office and it was a clinic day too! So he actually gave me a full check-up which was really cool since I just showed up.

He says that I have a little bit of wheezing in my right upper lobe and a few crackles in both my uppers which is where I usually have my congestion. He ended up giving me another inhaler to do twice a day like the Advair hoping that will help out without me having to go back on prednisone since today was my last day (thank god!)

We both agreed that if by Monday I am still not feeling up to par I need to be re-admitted to the hospital. I am kinda bummed about this so please think positive thoughts that the next 4 days these antibiotics preform some sort of miracle and I miraculously feel a million times better or its back into contact isolation I go....oh joy.

One more week...

Boy did I call it. One more week of abx for me!

My doctors office called me this morning and said that yes I was to continue with home IV's and oh btw I needed to get to a lab by 4:00 to get drug levels and a bmp done.

Well that's all fine and dandy except Danny took my car to work with him today because we thought I didn't need to go anywhere (my Honda gets WAY better gas mileage than his Ford Lightning SVT!) today and oh yeah he had his keys too!

So I had to call my super awesome SIL and she came and saved the day and took me to get my blood drawn. When it comes to SIL I have to tell ya I got lucky in that category! Stephanie is there every single time I have needed her and I don't think I will ever be able to "re-pay" or give back all that she has done for me, even though I will try! :)

Anyway...I hope this last week of abx does the trick. I need to start feeling better already!!!

Last Night

Last night we went to dinner with a big group of friends. We ordered and ate WAY to much food. The restaurant is served family style so everybody has a little bit of everything. The waiter said the small order fed 2-3 people while the large order fed 5-6 people.

We had 2 tables sitting next to each other full of people, but our table had 8 people (4 couples) so we decided to order 4 large dishes...each couple picking a different dish. Figuring with what the waiter told us that was appropriate.

We ordered Lasagna, Chicken Carbonara, Spaghetti w/meatballs and Chicken stuffed with prosciutto and cheese with a pesto sauce underneath. All fabulously delicious but to much....the Lasagna and Chicken needed to be large and was all eaten, but both the Spaghetti and Chicken Carbonara came out in humungous bowls. They were so big that we all took some of each home and thats after all of us eating some of it too. We definitely know for next time we can order smalls for that stuff!

I was so full by the end I could barely breath or move and was on total carb overload I could have gone to sleep right there! LOL But it was another great night with great friends so it was worth the gluttony for one evening. :)

Here are a few pictures from last night:

The girls

Me and my fab SIL Stephanie

Me & Danny :)

Today, I think Danny and I are going to run a few errands but other than that just hang around and relax. Right now my awesome husband is downstairs making me breakfast while I sit here and do my treatments...I can smell the bacon...YUM!

Im miserable...

I am so glad to be home but I am so PUFFY because of the prednisone I am miserable!!

Tomorrow is my last dose of 50mg and then I start to tapper down the dose and I will be completely off them by the end of the week. It can't come soon enough...I usually don't get all the weird side effects that come with being on Prednisone because I am never on it long enough (more than 10 days give or take) or on that high of a dose to really cause a problem. I have never had the mood swings or anything like that.

Until this time...I was on so much solumedrol in the hospital (I was getting it every 6 hrs) and now the prednisone at home, I am finding myself very irritable and annoyed very easily and snapping at my poor husband for no reason! As soon as crankiness comes out of my mouth I realize I am doing it but I can't stop!! :(

My face/eyes are really puffy first thing in the morning and then get a little better as the day goes on but my belly is puffy my hands feel puffy (my rings feel a little tight)....im just BLAH!!!

OK....im gonna go now since I usually don't complain like this on my blog....sorry.