Im miserable...

I am so glad to be home but I am so PUFFY because of the prednisone I am miserable!!

Tomorrow is my last dose of 50mg and then I start to tapper down the dose and I will be completely off them by the end of the week. It can't come soon enough...I usually don't get all the weird side effects that come with being on Prednisone because I am never on it long enough (more than 10 days give or take) or on that high of a dose to really cause a problem. I have never had the mood swings or anything like that.

Until this time...I was on so much solumedrol in the hospital (I was getting it every 6 hrs) and now the prednisone at home, I am finding myself very irritable and annoyed very easily and snapping at my poor husband for no reason! As soon as crankiness comes out of my mouth I realize I am doing it but I can't stop!! :(

My face/eyes are really puffy first thing in the morning and then get a little better as the day goes on but my belly is puffy my hands feel puffy (my rings feel a little tight)....im just BLAH!!!

OK....im gonna go now since I usually don't complain like this on my blog....sorry.

Im Home!

After all day of trying to get home health situated because of an apparent Amikacin shortage I was finally discharged at around 7:00pm to go home. Lets just say they are lucky I got to come home because I would have been one unhappy camper if I didn't!

Tomorrow is my mom's birthday so my whole family is gonna come up for dinner and cake! :)

On a little side note...the nurse who gave me the wrong insulin resigned today. I feel kind of bad that she is now out of a job, I didn't want anybody to lose there job but at the same time what she did was VERY serious...I am very lucky I woke up!!

Can you imagine after all these years of having CF, being compliant with all my meds and taking care of myself, waiting for a double lung transplant and the thing that finally does me in is a nurse who can't read a chart? I don't think so!!

8 days down!

Tonight marks the 8th day of me being on abx! The good news is my O2 is lowered and I am "good enough" to be discharged Friday afternoon to finish my IV's at home. WOO HOO!! :)

This works out perfectly since its my mom's birthday is Saturday and we had always planned on my whole family coming over to my house to hang out and have dinner. So I am glad I won't miss that!

Still don't know what if anything is going to happen with the nurse who gave me the wrong insulin (read my last post for this info)..but you should see how the nurses are double and triple checking everything they do now. Its kind of funny....but im sure it wont last long. They are all being careful now because something just happened but give it a few weeks and im sure it will become more lax again.

I am just gonna be glad to get out of here and try and shed this solumedrol weight. Sure I have gained weight because I can eat anything in sight...but instead of it being good calories for good weight I am eating because I am starving and ALOT so its going right to my belly! Not a very flattering thing! :(

Oh yeah, and I wanted to ask anyone who has a port or a picc....do you still do normal exercising while they are accessed? I usually wait until I am completely done with my meds before I start working out again and I was just wondering if I could go to my yoga class with my port accessed next week. That way I will have only lost 2 weeks of classes and not over a month. Let me know!

Thanks~~Jen

its the weekend...

Well, its been an interesting week for me here in the hospital. The one thing I have been trying to get a hold of the most is my uncontrollable blood sugars due to the Solumedrol that I have been getting every 6 hrs. They have been crazy hi but I need the steroids so what can you do?

Last night I had a little "incident." I take 2 types of insulin Lantus which is the 24hr insulin and Novolog which is the fast acting insulin I take right before meals when needed.

Well last night at 10:00pm when I am getting my bedtime blood sugar checked and my nighttime dose of Lantus (my blood sugar was 117 which was really good for yesterday btw) my nurse says that I was to get an additional 10 units of novolog. I questioned her saying I thought that was wrong and what was my blood sugar from the night before (which it was 211 and I didn't require anything other than my Lantus.) She then tells me that my dr had changed the scale and thats why I was getting the extra coverage. So I said ok and that was that.

Fast forward to 2am when I wake up because I feel very hot and shaky. I grab my glucose meter and check my sugar real quick and was shocked when it came out to be 20! I hit the call light and quickly began to eat some oatmeal raisin cookies Danny had luckily brought me the night before and cracked open a Coke that I had sitting there from dinner.

The nurse came did whatever she had to do to follow protocol and then her and the charge nurse came in to tell me that she was really sorry but that she had read my chart wrong and that she wasn't supposed to have given me the 10 units of Novolog after all. Weird I was right....

Needless to say my Endocrinologist was NOT a happy camper this morning when he came in to see me and he also said that unless they say they have specifically talked to him I am only to get the Novolog at meals just like it said in my chart the whole time.

Do I have to ask the question again of why do the weird things always happen when I am admitted? I mean I guess we can just thank god that it happened to me and not some little kid who might not have woke up or recognized that they were feeling low and eat something. Its just scary sometimes....

in the hospital

I was admitted Tuesday because I knew last week I was starting to feel crappy but I wanted to hold out till I got back from our 4th of July in Orlando.

Well needless to say I think I waited to long because I have felt like complete CRAP the last 2 days. My x-rays show that I have a few mucous plugs which I already figured I had anyway because I could feel little hard pieces when I coughed a few times (sorry about the tmi there.) So my first night here I was awakened every hour through out the night for breathing treatments so needless to say I was exhausted ALL day yesterday.

Then this morning I awoke thinking I felt a little better but soon after my first treatment/vest I started feeling really tight and my sats weren't staying above 90 and I was on like 8L of oxygen. So Dr. Faverio gave me 100mg of solumedrol IV and treatments every 2 hours and that did the trick to open me up and raise my sats and lower the oxygen. We both think that the plugs are moving up and out and that is what is causing my sob. So hopefully they come out with out anymore trouble and I can get cleared out!

My blood work also came back that I was a little dehydrated and that my electrolytes where low so that was a little weird I have never had that before. So I was on fluids for a little bit yesterday and then today he started me on some pill to help with the electrolytes. So we will see...

Anyway...that's all that is going on right now. I will let you know how I am doing in a few days. My goal is to be home by the 16th because my mom's birthday is the 17th so please think good thoughts that I can be home for that!