Hi! My name is Jen, I am a 30 year old who has Cystic Fibrosis. I originally started this blog to keep track of my time on the double lung transplant list. Well after 2 LONG years and a lot of bumps in the road I finally received my transplant on December 2nd, 2010. Now I write about life post-tx and all that goes along with it! :)
Hi - this is Heather, Jennifer's mom. She wanted me to post an update letting you know what's been happening with her. You probably know that she has been in the hospital for a long time now. It's been 5 weeks and she hasn't gotten any better - only worse. Sunday her doctor called Danny and Kevin and me and told us to come over to the hospital - that he wanted to talk to us in person. Right away I was so upset! When we got there he told us what we already knew - she wasn't getting better - there wasn't anything else that they could do to make her better except get her transplant done. The plan was to take her by ambulance the following day (yesterday) up to Shands where she would be admitted and stay until they had a donor. Yesterday morning they put her on a ventilator and flew her up to Gainesville. She is now number one on the list so we pray that her new lungs will come very soon. This morning at 11:00 she will have a tracheotomy done so that they can get the tubes out of her throat and get her moving around again. Danny and I won't be leaving her side. I promise to keep you updated as things happen. Please keep her in your prayers - we love her very much.