Hi! My name is Jen, I am a 30 year old who has Cystic Fibrosis. I originally started this blog to keep track of my time on the double lung transplant list. Well after 2 LONG years and a lot of bumps in the road I finally received my transplant on December 2nd, 2010. Now I write about life post-tx and all that goes along with it! :)
Jennifer is amazing! Only a few hours after her tracheotomy she was able to drink from a straw! Her doctor has removed her nasal tube and she will be allowed to eat soft mechanical food. Just this morning we were told that possibly tomorrow they would allow her to try a small piece of ice. Right now she's doing good watching one of her favorite shows. Tomorrow will be the start of something new - physical therapy - getting up and getting in shape for transplant.