Friday, August 29, 2008

General Hospital: Night Shift

So, anyone who knows me knows I LOVE me some General Hospital! But what some people don't know is that General Hospital now has a prime-time spin off show called General Hospital: Nightshift.

It has some of the same characters from the daytime show and some new characters and it mostly centers around the hospital at night and the different cases that come into the hospital and the drama between doctors and nurses, etc. whereas GH during the day isn't always at the hospital. Also, unlike the daytime show which airs everyday and never ends and doesn't have repeats. Nightshift is once a week on Tuesday nights and has 13 episode seasons that air on soapnet. The shows also match up with each other so sometimes they will refer to the other show and vice versa to have story lines coincide.

Anyway my point is (I promise I have one) I watch both shows but we don't have soapnet here so I can't watch it on Tuesday nights I have to wait until someone post the show on youtube and then I watch it. So this morning as I was doing my morning treatments/vest I watched the show from this week....and guess what one of the main storylines was about?? That's right CF! Let me tell you I thought it was a joke, I really would have thought they would have done a little more research than they did before airing a story like that. Oh well.

If anyone is interested in checking it out, here it is. They can't upload the whole show at once so you have to watch it in 6 different clips but that isn't to bad. If you watch it let me know what you think!


Wednesday, August 27, 2008

My Belly Hurts!!!

Well not much to report this week....Monday I worked out, that was good. But other than that all I have been doing is working.

The last three days though I am ok all day (because I am just sitting in my bed working on the laptop) and then when 4:00 rolls around and I get up and moving my stomach starts hurting, and it isn't just a plain old run of the mill stomach ache its a stabbing, double over in pain only helps if you are laying on your tummy kind of pain! When I was 20 I had my appendix taken out so I know that isn't it but its hurting right in that general area. I know it isn't cramps either because thats already passed. Any suggestions??

It really hurts but I feel dumb calling my DR. or going to the ER because my stomach hurts! Another day of this and I am not sure if I can take it...I am gonna borrow my mother-in-laws heating pad tomorrow if it happens again. I just thought of it now and its to late to go next door and get it for tonight (its 10:45pm) so I will just have to deal with ibuprofen . I am hoping tomorrow will be good, my work is having a training class at 5:15 and I really want to go so think good thoughts that I am up for it.

Oh BTW...last night we rented What Happens in Vegas with Ashton Kutcher and Cameron Diaz. VERY cute movie...a little predictable, they hate each other then fall in love...yada, yada...but still a good movie and you should check it out! Also, 4th season of Entourage is out on DVD and we are already on the 3rd disk...awesome show check it out if you haven't already (it airs on HBO) we love it.

Well, I guess that's it...Friday I work out again and hopefully we will be seeing my parents on Saturday. If anything really exciting happens I promise to let you guys know! Good Night.


Thursday, August 21, 2008

Couple pics from Saturday night!!

I only have a couple from my camera that are good the others are of people singing karaoke so they aren't that great.

Here is one of me and Danny at Chilli's...two for one baby!!

This one is of me and my two cousins...the one with the long hair lives here by me and the other is my cousin Maria who was here visiting from NY....I miss her already!!

CF and Dating

The last couple of days I have been thinking about this topic a lot. Now I know I don't have this particular problem anymore since I am luckily married, but truth be told...I never had a problem with these two things.

I have read a few blogs lately, both girls, who write about how hard it is to date and have guys find it difficult to deal with there health or don't want to get serious because of there health and while I read both the blogs on a regular basis and wish that some day they both find somebody as awesome as my Danny (if that's possible!!) I can't completely relate to what they are going through.

Before I met my husband, I had a handful of serious boyfriends starting all the way back to my high school boyfriend when I was 17 and not to mention the guys that weren't that serious in between my CF was never even a main topic it was just something I had to deal with....some of the "not so serious" ones in between didn't even know anything was different. I guess maybe because I wasn't really that sick when I was a teenager/ young adult it was different for me I don't know.

I am not sure why I am even writing this tonight....luckily I didn't have to go through anything like that and to put the cherry on top I also found the most wonderful man in the world who loves me, all of me, CF and all. I just hope others out there find their special someone too.

Wednesday, August 20, 2008


My cousin left sucks, the next time I will probably see her will be after my surgery when she comes to help take care of me (she is a nurse practitioner.)

Other than that, I have NOTHING going on. I swear my life is so in a rut. I wake up exactly the same time everyday (excluding weekends when I usually sleep in an extra hour) work for exactly the same amount of hours, cook dinner, go to bed and start it over the next day. I don't think it would be so bad if I could actually GO to work but working from home is SO lonely!! The weekends are usually a little better we see a few friends go to dinner one night but nothing spectacular.

I have been looking for a puppy to get so at least I have a pal to play with during the day but I haven't found one yet. I just need to hurry up and get my transplant so I can get on with my life and actually feel like a productive member of society!!

ok....enough sorrow for one evening!! I am off to watch General Hospital. :)

Tuesday, August 19, 2008

Lazy Day...

Well thanks to the Tropical Storm everyone had today off and it wasn't even that big of a deal! Last night when I went to bed it was raining and windy and it stayed that way pretty much all night and this morning. The power had gone off a few times but other than that it wasn't really anything.

I woke up at 9 this morning to do my therapy and breathing treatments and then because it was rainy and dark I went back to sleep until 11:30!! Talk about lazy morning....the whole house was like that. Unfortunately, my cousin has to go home tomorrow night so we are just going to be hanging out the rest of the day.

I was supposed to have my work out session today but obviously I missed that so I am going to have to make that up. Oh well.

Monday, August 18, 2008

Looks like a hurricane!!

Well...looks like we will be having a category 1 hurricane tomorrow morning! It is only a Tropical Storm right now but it is predicted to strengthen and make land fall right here in SW Florida.

We aren't to worried, I have lived here my whole life and have been through every storm that has come through here as far back as Hurricane Andrew in 1992. Plus, my husband just remodeled our house and we have hurricane impact windows and doors so we are completely safe. I will let everyone know how it goes tonight and into the morning.

On the plus side my cousin is still here from NY and I have LOVED spending time with her! Her flight to go home is Wednesday night so depending on the storm she might be here a few more days! I wouldn't mind that one bit. ;)

We had a girls night out dinner and a movie Friday night. We saw Sisterhood of the traveling pants 2, it was very cute. Saturday night we went out to a karaoke bar and had a blast...I will post pictures was hilarious.

Anyway...don't worry about the storm we plan on just snuggling on the couches and watching a good movie. Talk to you all soon!


Wednesday, August 13, 2008

Nothing Much....

Not much has been going on here so I haven't had anything really to talk about! I have had work-out twice this week and each time I have gotten a little bit better which is a great thing.

Today when I worked out, not only did I get through all of my exercises twice (the other day I was tired after going through all of them once) but I went through them quicker and with less recovery time after each (meaning I wasn't AS out of breath after each move as I was on previous days!) So I am kinda proud of myself that I am improving a little bit each time and hopefully it continues.

On a side FAVORITE cousin in the whole world is coming to visit me! She lives in NY and will be here Friday morning for 5 days!!! YEAH!!!! I am super excited and can't wait to see her. It will be a year in September since I was in her wedding and thats when I saw her last. She is fabulous and everyone loves her so I am sure I will have pictures to put up from this weekend.

Anyway....I got to get some work done so I will post more later.

p.s. I go to the doctors tomorrow to get my port flushed so I will let you know if anything happens there too!

Wednesday, August 6, 2008

Today was a shocker...

So yesterday afternoon as I am cuddled on my couch with a good Sex and the City episode I get a phone call....It was from a lady who my mom has been talking to about possibly getting me to start working out and getting ready for when I get my transplant call.

**We have been working on this for awhile since we know the stronger you are going in for transplant the more likely you are to have a quicker recovery or at least be better off than somebody who didn't move at all before there surgery. But there is no way I have the energy to go to a gym 2-3 times per week to work out so we have been looking for places that will come to me...that way if I need my oxygen I am at home and will feel comfortable enough to use it.**

So anyway back to yesterday...I get a call from a very nice lady (now I didn't know we had actually found a place and that they were going to call me) and she wanted to set up an appointment to come and "meet" me. So we set it up for Thursday afternoon and I went back to my regularly scheduled programming!

Today, I got a call from Stacie (work out lady) and she had a cancellation and wanted to know if she could come today instead of tomorrow, which was fine because I was just at home working and I didn't have any plans of leaving.

So at 12:00 and to my surprise I answer the door to a lady with a work out bag and weights! My first reaction was..."we aren't actually gonna work out today are we??!!" I thought we were just gonna talk and maybe sign a few papers...she had other plans!

So today was my first "mini" session. I did a warm-up and only one round of all the exercises. She is coming monday and wednesday of next week so hopefully I do better!

At first, after she left I felt kind of jello-e (you know that I just worked out for the first time in a LONG time feeling) but I have to say I actually felt really good for the rest of the day so this might be a good thing for me.....we will see after next week...or worse tomorrow when we see just how bad my body will reject any kind of manual labor!! :)

Saturday, August 2, 2008


So today after I woke up, Karen and I went to the beach. We were there for 3 hours before I had to go home, it was very hot today. We heard later that there might have been Red Tide...but we aren't sure.

After the beach I came home and took a nap until Danny got home from work. I always need a nap when getting home from the beach!!

Once Danny got home we took showers and then got ready to go out to dinner with some friends. We went to Carrabbas it was the first time going to the new one in our town and I wasn't impressed. They crammed like a million people in such a small wasn't very big at all and it was really warm in there! I don't think we will be going back.

After dinner, we went over to our friend's house for a little bit where the guys played Guitar Hero III. It's a pretty cool game but they only have one list of songs to play so after awhile you get tired of hearing the same songs over and over again.

Anyway...we are home now and I am just doing my breathing treatments and then I am hitting the hay!! Good Night!

Friday, August 1, 2008

End of the week

Well, today is Friday and its been a pretty uneventful week. I did end up catching Danny's cold and I felt crappy for a few days but I am feeling better now.

Wednesday, I had to go into work for a couple of hours because my laptop that I use for work wasn't working but now its fine. I also gave the HR department my brand new social security card!

Next week I have to go to my doctor's office and have my port flushed. When I am not on IV abx, my port has to be flushed once a month with some saline and heparin to make sure that it works properly.

I was either 20 or 21 when I FINALLY let my doctors talk me into getting a medi-port and I only did it because there was a new doctor who put it somewhere other than where most doctors put them. Most people have ports placed on there chest and since I was young and lived in FL where bathing suits and tank tops are staple clothing items I refused to get one if it was where people could see them. I am thin and if I were to have a port on my upper chest it would have been obvious to see.

When I went in for my surgery to have my port placed, the doctor had me wear my bra and right where my bra strap went around my chest to clasp in the back (on the side under my left arm) he made a tiny little circle under the strap and thats where he placed my medi-port! When it is not accessed you would never know its there because it is always under a bra or bathing suit plus he used one of the smallest ones they have so even if my shirt is off unless I am laying on my side you can't really see it either unless you knew it was there.

Since I have been going in the hospital a lot more lately I am just glad that I made the decision along time ago to have a medi port. There is no way my veins would be able to handle all the abx I have had to have the last year and half.

I am not sure if once I have my transplant if they are going to take it out or leave it in. I wouldn't mind leaving it in but I guess it all depends on what the doctors want to do. Anyway....I think I am going to go downstairs and make some lunch!!

Have a great day!!