Sunday, September 26, 2010

Disney on Ice!

My sore throat is gone! Yay! It took about 2 1/2 days to go completely away but now I am fine. I am still on Cipro and have noticed my cough improve a little bit so thats good.

Yesterday, I went with my SIL and niece Delaney to see Disney's Princesses on Ice! It was such a cute show and I was glad Steph asked me to go with them. :)

Princess Delaney!

Today Danny is working in the yard again putting up a fence to block off the area where we keep out trash cans and stuff. I swear we will NEVER be done....

Next week I have a Shands appointment. All the usually test have to be done six minute walk, Pft and labs. So it will be a long day! I will let you all know how I do when I get home.

Have a great week!! :)

Thursday, September 23, 2010

Not feeling to hot

Yesterday I woke up with a sore throat. I haven't had a sore throat in years and it all came rushing back to me on how painful they are! I can't swallow, cough, talk or eat with out being in pain. Hopefully it doesn't last much longer.

I called my doctor and told him I was feeling a little under the weather and he started me on 14 days of cipro so hopefully that helps.

I am hoping I feel better by Saturday because I am going with my SIL and niece to see Disney's Princesses on Ice. :)

In a couple of days it will be a whole month since my "dry run." I kind of thought I would have had another call by now. I just hope I don't have to wait to much longer I am ready to get this show on the road!!

Sunday, September 19, 2010


Sorry its been a week since I posted last. I have been wanting to post about my hearing I just haven't got around to it until tonight!

So, I went to the ENT last Monday and I was put into a little box for my hearing test. IT was two parts, one part where they spoke words to me and I had to repeat them and the other where they do the little beeps and I have to push the button when I hear it.

Now I must say that between the ringing in my ears I already have and my pulse O2 tank I found it very difficult to hear the beeps. It seemed like every time I took a breath and it made the noise to pulse in my nose is when they were doing the beeps so that kind of irritated me.

When I went back in the exam room the doctor came in to read my results. He said that he was surprised that this was the first time I had complained of hearing problems cause according to my test I had severe hearing loss. He also said that the ringing was probably permanent, which is the most annoying part of this whole situation!

Hearing aids at this point are the only way my hearing will come back. But he says as long as I feel I am fine I don't need them. The only time I noticed I have a real problem hearing is when like Danny tries to talk to me from the other room or something. Other than that I am ok.

Maybe sometime down the road I will think about the hearing aid option but right now its not something I am fully ready for. I already feel like an 80 year old caring around oxygen I don't really want to throw hearing aids in the mix! LOL

Saturday, September 11, 2010

weekend update!

I hope everyone is having a great weekend!

Wednesday I went to see my CF Dr and of course he didn't see anything in my ears that looked out of place. So he gave me the card of a ENT that I go to on Monday for a hearing test and office visit. Hopefully I will know more info then.

I got a call from Shands Thursday afternoon and when my phone rang I thought I was getting my call but no such luck! They were calling to tell me that the last appointment I went to I guess something funky showed up in my sputum culture so instead of my Nov. 17th appointment they want me to come back Sept 29th. I was in my car when they called so thats why I don't know exactly what they found (cause I couldn't write it down) but I wanna say its some kind of Aspergillus but don't quote me! If it was Aspergillus, I would think they would know how to treat that with out me coming back in that's why im not sure I heard that correctly. But I will let you know for sure once I get back from that check-up!

We rented a bobcat this weekend and Danny and his 2 brothers and his best friend Curt have been outside ALL day today digging up these nasty root systems that are in front of our house left over from some Australian Pines we cut down. The one stump in particular is being a real pain the butt and not wanting to come out! He will be back out there tomorrow working on it too.

The yard is all torn up right now but when its done it's going to be BEAUTIFUL!! I took some before pics this morning so I will post before and afters when the whole project is complete! :)

Went to the flea market this afternoon with my mom, aunt and sister and then we had lunch at a yummy Irish pub. I love some fish and chips and if its on the menu I usually order it. I love seafood but Danny doesn't so I rarely get it at home.

Tonight is my GNO dinner! Its been awhile so I can't wait to see some of my favorite ladies! I am sure I will have pictures to post later. Have a good one everybody!

Friday, September 3, 2010

Ringing, Ringing and more Ringing!!

The ringing is still coming from my ears!!! AAAGGGHHHH!!!

I have been off the Revatio for a week now and no change. I talked to my TX center yesterday and they want me to go to my local Dr so they can look in my ears and see if they notice anything and if he comes up with nothing then they want me to go to a ENT.

I am really concerned that this is gonna be a permanent thing and while its not painful at all its still VERY annoying.

I had posted something about this on Facebook the other day and Piper commented on how she had the same problem and that it was from Tobra.

I used to do inhaled Tobi every other month and then when I was sick I would get IV Tobra. But I stopped doing everything nebs and IV well over 2 years ago because I was starting to show signs of resistance to Tobra and my TX Dr wanted me to become sensitive to it again. So I don't think that is was my problem because my ears just started to bother me this last admission when the Revatio was started.

Well, I hope everyone has a great Labor Day weekend! We are going to dinner tomorrow night with friends and then I think my parents and siblings are coming on Sunday for a BBQ but thats up in the air so we will see!

Goodnight All...