Sunday, May 23, 2010

Fun Filled Weekend!!

All I can say about Saturday was it was FANTABULOUS...or..."Supercalifragilisticexpialidocious even though the sound of it is something quite atrocious! If you say it loud enough, you'll always sound precocious...SUPERCALIFRAGILISTICEXPIALIDOCIOUS!! LOL Love it!! :)

My sister, me, mom and my cousin Kasey

Me and Jessie

Friday night we went to one of my favorite restaurants for a friends B-Day dinner at PF Changs. I LOVE that place...Seared Tuna and Mongolian Beef...YUMMO! :)

Me & my Love

Again...I like this one better! :)

Today, we just ran errands all day. Got my car an oil change, went to pick up Danny's ring from the jewelers, went to Barnes & Nobles to look at the FABULOUS Nook I am hoping to get for my Anniversary in a couple weeks (hint, hint) and then went food shopping. Now we are just relaxing and cooking some pizza at home. Gonna watch the finale of Celebrity Apprentice in like 20 min...hope Brett Michaels wins it all!! :)

Thursday, May 20, 2010

Yesterdays TX appointment

So yesterday was our very long and exhausting day that is my transplant appointment day. My tx center is roughly 3 1/2-4hrs away so depending on when my appt is and if I have test that day we either drive up the night before or we just get up super early and drive in the morning and then drive home when we are done.

Yesterday, my appt time was at 11:30 and I no test scheduled so it was "supposed" to be and easy day. We left my house at 7:00am got breakfast then got on the road arriving in Gainesville a little ahead schedule. We go up in the elevator to the 3rd floor and walk into a waiting room FULL of people. Right there we had a bad feeling it was going to be a LONG day. With my tx center you are either in and out or you wait HOURS...its never in between!

So I sit down they call me back to do my vitals and then I went back to sit with my mom. Surprisingly enough we got called back rather quickly and put in a room. Within 10 minutes the tx coordinator came in and asked if I could do a six minute walk and PFT because if I didn't I would have had to come back in 3 weeks instead of 3 months because your test have to be updated in the system every 6 months or it automatically makes your score a 0 and since we can't have that I needless to say did the test even though I wasn't to thrilled about it.

So I did my six minute walk and did fine but when I did my PFT and I looked at my numbers after each time trying I knew I was a couple of points down from the last time I was there. Which isn't to big of deal because I have been in the same range of numbers for the past 2 goes up a couple and down a couple but basically its been the same.

After all my test were done we went back into a room to wait for the Dr. So the short version of this story is when he came in he looked at my test scores and was like well we need to get you transplanted...and im like well DUH I have been waiting 2 years!! He then had me stand up to see how tall I was (5'4" btw) to see if maybe he could bump up my height which will open up then window a bit of what lungs I can receive.

I know I have said this before on my blog but I have never in my whole 2 years going to Shands knew what my LAS was because I was told back when we started this process that they don't tell you so don't even ask and I think it was Sara who told no Jen you absolutely can know! So yesterday I asked if I could know what my score was and surprisingly he said sure and called the coordinator in right there to look it up. She opened my file and found out that I was at a 37.9. The Dr then questioned why my score was so low and right there in front of us they went into the computer and updated my name and bumped my score up to 41!! So hopefully with that bump in my score I will get some kind of action and actually get my call! How exciting would that be??!!

Once we were all done with the appt we got in the car and headed home. It felt like it took FOREVER but we pulled in the drive-way around 7:oopm and I was exhausted! I didn't even want to cook dinner last night I just wanted to go to bed and watch American Idol and General Hospital. LOL

Overall it was a good day...I don't have to go back till August but who knows maybe I will be there sooner! Keep thinking positive thoughts for me. I know there are a lot of people out there waiting right now but I am ready!! :)

Tuesday, May 18, 2010

Gainesville Trip tomorrow

Tomorrow I go for my 3 month tx check-up. I have no test scheduled for tomorrow so it should be a fairly quick and painless (not that I ever have pain) trip. Every other trip is when I do the blood work, six minute walk and PFT and I did all that last time. So this trip is mostly a long car ride to be seen for a few minutes and then turn around and drive home.

I am feeling pretty good so I am sure they will say I am doing great and that they will see me in 3 months....story of my life! Oh well its better than being sick so I guess I will take it! :)

On the upside I have been going to the beach pretty regularly and am starting to get a nice base tan going on! I probably would have more color by now if I wasn't such a fanatic about not wanting to burn so I reapply my sunscreen seriously like every 30 minutes. But its better safe than sorry and I don't want to turn into a lobster...and then peel. ewww that's just NOT fun!

I have a full schedule of things planned this week. Dr appt tomorrow, beach or pool Thursday with an eye brow waxing appt at 5:45, hair cut and maybe a few highlights Friday, Friday night dinner at my fav PF Changs for a friends Bday, and then Saturday me, my mom, my little sister and my cousin are driving up to Tampa to see Mary Poppins the musical!! We are totally excited about this and I am sure I will have pictures to share once I get home!!

Well, I hope everyone has a great week!!

Sunday, May 16, 2010


Today I hit the 2 year mark on the lung transplant waiting-list!

I have to believe that my time is soon. Unlike so many of my transplant waiting-list friends, I "knock on wood" have never even had a dry-run.

I fully believe that there is a bigger picture plan out there for everyone and I guess my turn hasn't come yet because if it had I wouldn't have ever come up with the idea to start Jen's Kids and that is something that I am very proud of.

Hopefully (I say this every year) 2010 is my year. I am ready to move on to the next phase in my life and I can't do that until the flippin phone rings!!! :)

I guess whenever you are in the mood to say a little prayer or to throw some good vibes out to the universe, please think of me and that I get my call soon. I would very much appreciate it!

Sunday, May 9, 2010

Happy Mother's Day

Happy Mother's Day to the best mom a girl could ask for!! I know im a little high maintenance at times mom but you are always there for me and your the first one in my corner if I have a problem. I Love you! :)

Happy Mother's Day to all the other mothers out there too! I hope everyone has a fantastic day with their moms...

Monday, May 3, 2010

Week 2 finished!!

Today marks my 2nd week of abx with one more week to go and I am feeling great! I just finished my last dose of prednisone today so I am looking forward to the blood sugars stabilizing a bit and being able to go to sleep at a descent hour! ;)

My first weekend home was fabulous. Friday night Danny and I enjoyed dinner and a movie night in with his parents. We watched The Stepfather, it as ok very predictable though.

Saturday, Danny worked all day and I relaxed at home and then we went to our good friends Cat and Eric's house for there engagement party. They had a pig that they roasted and LOTS of yummy food. I was so glad to be able to attend the party...I hate missing out on things like that because it seems I am always stuck in the hospital!

Sunday I met up with my mom, brother and sister at Coconut Point mall (its in the middle of their house and mine) and we did some shopping. I got some cute shirts from Express but that was it. I have been looking for a long time for a pair of capris but I haven't been successful and with it getting hotter by the day I hope I find some soon...I have been slowly growing out of ALL my old ones! (which is good for the weight gain, bad for the wallet!!) :)

I have to get some blood work done tomorrow but other than that I have no plans. I hope everyone has a great week!!