Hi! My name is Jen, I am a 30 year old who has Cystic Fibrosis. I originally started this blog to keep track of my time on the double lung transplant list. Well after 2 LONG years and a lot of bumps in the road I finally received my transplant on December 2nd, 2010. Now I write about life post-tx and all that goes along with it! :)
Jennifer has continued to surpass all odds. She is a fighter - we knew that - but now everyone who has either worked with her directly or heard about her here at Shands knows that too! She pushed herself to sit in a chair yesterday. She is still on 2 PPM of nitric oxcide and they have her down to 40% oxygen on the ventilator. Her heart rate and blood pressure have now come way down since pre-surgery. Of course she is being hard on herself - she wants to be further along in her recovery - walking down the halls - but we're not there yet. Her legs are very weak both from being in bed for so long (5 weeks at Health Park before coming here) as well as being on ECMO. She also still has all 4 drains in - but little by little other things are coming out. Her doctors and surgeons are very happy with her progress. Thank you everyone for keeping Jennifer uplifted in prayer. Please continue to do so - Jennifer is proof that miracles do happen!