Wednesday, February 23, 2011

So...good news and not so good news...

On Sunday I woke up feeling VERY congested around my trach. NOT my lungs I just felt like crap was getting stuck in my trach and it was driving me crazy! I was coughing up paper towels full of mucous out of my trach (very gross by the would think after 29 years mucous wouldn't gross me out so much but it does!) Finally I said to Danny should I call my coordinator and of course Danny being Danny says "I don't know"....thanks babe!

So I said for him to grab my thermometer (I check my vitals 9am and 9pm everyday I don't know if that is standard with everyone or not but if my temp is EVER 100 or greater I am to call immediately no matter what time of day) I didn't think I had a fever but I thought I will check it anyway and then decided if I am gonna call the coordinator. That was as 1:30pm and guess what I had a fever 100.4 to be exact! So I called my coordinator and of course they admitted me an hour later.

After x-rays and blood work it was determined that I have a little bit of pneumonia in my right lung. :( I of course was upset I mean I have done EVERYTHING right and worn my stupid mask everywhere how could this have happened? Well apparently I still have Psedomonas in my sinuses and that dripped down into my pretty new lungs and caused the pneumonia. Wonderful.

I was also upset because as you all know I was supposed to go home this weekend and I thought for sure this would delay my home coming by another week or so at least. Well I saw my wonderful Dr this morning and he said that I was going to be released on Friday and that he wanted me to do one more week of home IV's. I said Home, Home or tx-housing home....he says let me think about it.

Well my coordinator JUST called me because she wanted to know who I used for home health cause my Dr wanted her to set up my home health...that means Friday morning I get to go home!!! I haven't been to my house since the beginning of October and I am SO excited you have no idea!!!! :)

So I have to do IV's for a week...big deal I have done them before I get to go HOME!!! WOO HOO!! Thanks to everyone out there who put out all the good going home vibes for me I (and Danny) appreciate it!!!


P.S. Another piece of good news I found out the other day is my dr told me that my latest culture came back that I was sensitive to a bunch of abx which is great news so we can kick this pneumonia's butt! ;)


Katey said...

Glad things are better; I assume you are home now. It's tough after transplant having these unexpected things come up. I get pneumonia at least once a year, sometimes 2-3. They usually tell me that CF in our sinuses, which we still have after transplant, drains into our lungs, and that is how pseudomonas gets in there. Granted, pneumonia doesn't always have to be caused by pseudomona, but it can. My coordinator is strict also, in the fact of reporting a temperature greater than 100 degrees, no matter what. I think we all learn after transplant that things can happen so quickly, and even a small fever can be something serious sometimes. Crazy.

I know you are happy to be out and home! Praying you continue to feel better and that you will continue to be pneumonia and infection free!