So as you all know from my previous post my LAS (Lung Allocation Score) was raised two weeks ago when I went to my tx check-up. With that being said it now has all of us on a little bit more higher alert than say the last 1 1/2 years of nothing happening!
Danny and I keep saying ok we need to get a bag packed so when we get the call we can just go. But I seriously have know idea what to pack! I am at a complete loss on what things I will need and what things I wont need till later on.
So I am asking all online friends out there who are post-transplant to please help. What items did you bring in your bag? What items did you not bring that you wish you had? What things will be most helpful for my time in the hospital and then when I go to the apt?
Anything else useful that I am forgetting please feel free to throw in there! Every little bit helps...I was up all night last night because every time I fell asleep I would dream that I got my call so its making me feel like I am not prepared (mentally yes, packing wise no!) at all.
Thanks!~Jen
Kruger national Park Pics April 2023
5 months ago
3 comments:
Hey Jen, I'll do a post on this today and I'll add some info that I passed on to Piper a while ago when she was asking similar questions!
check out this post on CF2Chat :)
http://www.cf2chat.com/e107/e107_plugins/forum/forum_viewtopic.php?29488
<3
hah, i was going to give my list but it's on the link that amy posted, so seems kinda unnecessary now. i may do a post on this as well at some point. believe me though, when the time comes you won't *feel* ready, but you'll realize once you get there that you have more than you need! just another fun aspect of transplant ;)
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