I get to go home tomorrow!! I am going home on abx I am just not sure how long...if I had to guess I would say another week.
My doctor would also like me to start an aerosol that is still in the clinical trials. It is called Aztreonam Lysine for Inhalation. It would be an aerosol 3 times a day every other month (taking the place of the Coliston I do now.) He says I fit in the criteria needed for the study and its supposed to improve your FEV1. I had to call Shands yesterday to get there ok so I am waiting to hear back from them on that.
Has anyone else heard about this study or is anyone else on it already?? I would love to get some feed back on what you all think.
How Things Are
1 day ago