Sunday, July 25, 2010

800 Days

Today my little counter on the side of my blog says that I have been listed for a double lung transplant for 800 DAYS!!!

I would never have guessed in a million years that I would be waiting this long. I have to believe that 2010 is my just has to be. If not I am likely to loose my mind!! No not really, but it sure feels that way sometimes.

I am just ready to FEEL better.


Heather said...

I'm with you! I remember the day you were listed - how happy we were - I never would have dreamed that 800 days later we're still waiting. I agree with you - this is your year. Enough with the practicing already, it's Jennifer's turn!

Piper said...

Ugh -- I want so badly for this to be your year too! I can't even believe how long you've waited. As much as it sucks, you should be SUPER proud of yourself for holding on this long with your CF lungs. All that said, bring on the transplant!

BTW, I know you asked -- my score was somewhere around 47 when I was transplanted. On the high side, I think, but I had been on the top of the list for a while and my O2 requirements were definitely getting up there. Ironically enough, I think it was the "damp run" with the intubation that pushed me up and way over the top of the list -- after that everyone was freaked out about getting me lungs. Not a strategy I would recommend to others though ;) I'm told anything in the 40s is a good score.